Empty Nose Syndrome – Bente’s Story: A Life Interrupted by Septoplasty and Turbinate Reduction

Empty Nose Syndrome case · Netherlands

Bente Van de Veerdonk: Empty Nose Syndrome After Septoplasty and Coblation Turbinate Reduction

Bente Van de Veerdonk was a young woman from Oss, Noord-Brabant, whose health deteriorated after nasal surgery in early 2024. The source material documents severe dryness, burning pain, excessive airflow sensation, disturbed breathing, hyperventilation, extreme sleep loss and a relentless search for relief.

Source context: This page preserves the supplied account of Bente’s life, medical history, symptoms and online posts. Statements about the effects of coblation, corticosteroid sprays, Empty Nose Syndrome and the relationship between surgery and later decline are presented as reported in the source material rather than as independent medical findings.
NameBente Van de Veerdonk
BornDecember 28, 1997
LocationOss, Noord-Brabant, Netherlands
StudiesChildcare; Marketing & Communication
Nasal surgerySeptoplasty + bilateral turbinate reduction
Passed awayNovember 2024

Empty Nose Syndrome: A Tragic Story

Bente Van de Veerdonk was a vibrant and determined young woman from Oss, Noord-Brabant, in the Netherlands. Born on December 28, 1997, she had a promising future, balancing aspirations in marketing and communication with a career in childcare.

Her life ended in November 2024, approximately one and a half months before her 27th birthday, after a devastating period of health problems that the source material associates with septoplasty and turbinate reduction.

During the septoplasty, Bente’s inferior turbinates were reduced using coblation. The source describes this as the event that led to Empty Nose Syndrome. Alongside ENS, Bente also lived with Crohn’s disease and thyroid imbalance, adding further complexity to her health.

A Life of Ambition and Dedication

Bente’s educational path reflected her commitment to learning and personal development. She studied childcare at ROC de Leijgraaf from 2014 to 2017 and earned qualifications as a pedagogical employee.

Her dedication to working with children was reflected in her role at Avem Kinderopvang from July 2019 to November 2021, where she worked in care and early childhood education.

She later broadened her professional ambitions by studying marketing and communications through LOI, the Leidse Onderwijsinstellingen, in 2023.

A Multifaceted Health Struggle

In addition to her professional and academic goals, Bente faced chronic health challenges. She had Crohn’s disease, an inflammatory bowel condition, and also experienced thyroid imbalance that left her body feeling fragile and unpredictable.

Despite these challenges, she continued searching for ways to improve her health, including alternative approaches such as homeopathy and consultations with different specialists.

The Nose Surgery That Changed Everything

In early 2024, Bente underwent nasal surgery intended to correct a deviated septum and reduce enlarged turbinates.

The procedure included septoplasty and bilateral turbinate reduction using coblation, a technique commonly presented as a relatively conservative method intended to improve nasal airflow.

According to the source, Bente developed immediate postoperative complications that progressively worsened.

Her postoperative care included corticosteroid nasal sprays. Bente herself believed that these sprays further damaged her nasal mucosa.

Video About Bente Van de Veerdonk’s Case

Severe and Unrelenting Symptoms

Excessive airflow sensationBente felt that too much air was passing through the nose.
Burning nasal painShe described a persistent and severe burning sensation inside the nostrils.
Dryness and crustingSevere nasal dryness and crusting were reported, and she believed steroid spray worsened the problem.
Mouth-open sleepShe slept with her mouth open because of nasal discomfort, which further increased dryness.
Hyperventilation sensationShe described inability to sense airflow during exhalation and said hyperventilation was worst at night.
Extreme sleep deprivationThe source describes periods of as many as five days without restorative sleep.
Constant breathing awarenessShe became intensely focused on breathing and unable to stop monitoring it.
Loss of concentrationEven simple activities such as watching television became difficult.
Systemic symptomsDry eyes, a lump in the throat, painful ears and burning sensations in the chest and limbs were also reported.
Attempts to reduce airflowShe experimented with nose clips, tape and other methods to block excessive airflow, without success.

The source interprets this symptom pattern as consistent with Empty Nose Syndrome, particularly the combination of an excessively open nasal sensation, severe dryness and loss of normal airflow perception.

Other Symptoms Likely Related to ENS

Additional symptoms listed in the source include dry eyes and mouth, difficulty swallowing, a persistent lump-in-the-throat sensation, ear pain and burning across the chest, arms and back.

Other Medical Conditions

The source states that Bente described her thyroid as being “close to being too hard,” which was interpreted there as possible hyperthyroidism or another thyroid disorder. The exact diagnosis is not established by the supplied text.

A Desperate Search for Relief

Bente searched tirelessly for help. She consulted specialists and planned to visit Dr. Dixon, described in the source as an ENS specialist in Rotterdam.

She experimented with nasal ointments, warm drinks and alternative treatments including homeopathy. The relief was described as either brief or nonexistent.

In online forums, she shared her experiences openly and asked other patients for advice, alternating between hope that something might help and despair when the symptoms continued.

“I can’t focus on anything else but my breathing. Sleeping is a BIG issue... I really need help to make it a bit more bearable because now I can’t even focus on the TV. You have to imagine.”

Her posts also described severe insomnia, use of lorazepam, declining mental well-being, isolation and an urgent desire to find a treatment that would make the symptoms bearable.

The Final Months

During the approximately ten months after surgery, the source describes a dramatic deterioration in Bente’s quality of life.

Health problems that had previously been manageable became overwhelming. She endured sleepless nights, chronic pain and a feeling that her body was failing in multiple ways.

Despite continuing to search for treatment and support, her suffering eventually became overwhelming, and she was lost after a final crisis in November 2024.

A Legacy of Awareness

The source material states that Bente was the sixth person known within these ENS support communities to be lost during a severe crisis in 2024.

It also names Charly Audes of France, Tyler Kuckelman of the United States, Océane Flavigny of France, Sam Treffry of Australia and an unnamed 54-year-old Canadian man as other people reported by the same online communities during that year.

The source specifically notes that these reports came from three Facebook ENS support groups with approximately 5,000 to 6,000 members and should not be interpreted as global epidemiological statistics.

The original text argues strongly that Bente’s outcome was directly connected to complications following septal and turbinate surgery and calls for greater medical accountability, stronger warnings and reconsideration of procedures that alter turbinate tissue. That causal and policy position is preserved here as the viewpoint of the source material rather than presented as an independently established conclusion.

Profiles and Supporting Material

Empty Nose Syndrome - Jack Ackland's Silent Struggle: The ENT Surgeon Who Took Down a Combat Pilot

Historical ENS case · U.S. Air Force veteran

Jack Ackland: A WWII Veteran’s Long-Term Suffering After Turbinectomy and Nasal Surgery

Jack Ackland’s story spans military flight training, repeated sinus procedures, chronic pain, disability and a decades-later medical review stating that his post-surgical condition would now be described as Empty Nose Syndrome.

Jack Ackland served in the U.S. military during the World War II era and hoped to continue flying. According to the supplied article and family documentation, worsening sinus problems during flight training led to multiple operations, including turbinate surgery. The procedures were followed by persistent pain, excessive nasal openness, atrophic rhinitis, recurrent respiratory illness and loss of his ability to continue his military flying career.

Historical source note: This page is based on the supplied case material and on excerpts from a 2018 article by Jack’s son, journalist Len Ackland. A later ENT review quoted in that article stated that Jack’s post-surgical condition would today be called “Empty Nose Syndrome.” The supplied material contains conflicting references to the exact year of Jack’s passing, so this page uses “early 1960s” rather than silently choosing one date.
Military roleU.S. Air Force / WWII-era service
Key surgeryTurbinectomy and nasal resection
Later descriptionCondition comparable to ENS
Long-term outcomeChronic pain and disability

Military service, flight training and worsening sinus problems

Jack was a devoted serviceman who wanted to fly. The supplied account states that his sinus symptoms became increasingly difficult during aviation training, where pressure changes intensified facial and sinus pain.

He initially hoped medical treatment would allow him to continue his career. Instead, the case record describes repeated interventions followed by complications that progressively limited his ability to fly and eventually ended that part of his military service.

In a later letter, Jack recalled that the symptoms and pain became so severe during flying that he could no longer continue in the air.

The 1943 nasal surgery and turbinectomy

According to the article excerpts supplied with this page, Jack was treated by Major R. W. Wright, M.D., head of an ENT department. Jack wrote that he had been reluctant to undergo sinus surgery but eventually consented after substantial pressure.

The source material describes removal of nasal cartilage and bone followed by surgery on the turbinates. It states that the ends of the turbinates were resected, the nasal cavity became excessively open and Jack later developed atrophic rhinitis and abnormal airflow.

Submucosal resection The historical account describes removal of cartilage and bone from inside the nose as part of the operation.
Turbinectomy The turbinates were also surgically reduced, with the supplied article later questioning whether too much structure had been removed.
Structural consequences The case narrative describes nasal collapse, enlarged internal space and excessive airflow after surgery.
Atrophic rhinitis This diagnosis appears repeatedly in the historical discussion of Jack’s post-operative condition.

Years of chronic pain, respiratory illness and disability

The supplied records describe a long period of persistent illness after Jack’s operations. He experienced severe headaches, recurrent sore throats, bronchial problems, arthritis attacks, weight loss, weakness and susceptibility to respiratory infections.

A supporting physician, Dr. E. R. Fenton, was quoted as regarding Jack’s disability as permanent and total. The records also describe periods when colleagues saw him leaving work close to collapse and occasions when his wife had to collect him because of the severity of his symptoms.

March 1943
Major nasal surgery during military service

Historical records describe cartilage and bone resection together with turbinectomy.

1943–1946
Persistent symptoms and repeated medical care

The supplied material describes continuing sinus drainage, pain, respiratory complications and reduced physical capacity.

November 1946
Severe hospitalization

Jack was reportedly hospitalized with sinusitis, streptococcal infection and major systemic complications.

1950s
Ongoing disability and VA disputes

Jack continued seeking recognition for the long-term consequences of his sinus and respiratory conditions.

Early 1960s
Final period of severe illness

The family account describes worsening physical suffering, isolation and psychological distress before Jack passed away.

Eleven months later
VA reverses its earlier position

The supplied article states that the VA later recognized a mental disorder directly related to the consequences of Jack’s service-connected sinusitis and bronchitis.

Why Jack Ackland’s case is now discussed as Empty Nose Syndrome

The most important modern connection comes from the retrospective review described by Len Ackland. He asked Dr. Robert M. Meyers, an ENT professor at the University of Illinois in Chicago, to review the details of Jack’s operations and later symptoms.

According to the supplied article, Dr. Meyers explained that nasal surgery in the 1940s was performed much more aggressively than modern practice and stated that Jack’s resulting condition would today be referred to as Empty Nose Syndrome.

That retrospective description is significant because the historical records already described several features now associated with ENS discussions: extensive turbinate loss, an enlarged nasal cavity, excessive airflow, atrophic rhinitis, severe discomfort and profound functional impairment.

The VA appeal and recognition of Jack’s long-term suffering

The supplied case account states that the Department of Veterans Affairs initially declined to connect Jack’s final decline with his service-related disability. His wife appealed that decision while trying to support their children on a modest salary.

Nearly a year later, according to the source material, the VA reversed its earlier position. The agency recognized a marked personality change and psychiatric manifestations associated with an acquired mental disorder, and linked that disorder directly to the consequences of Jack’s sinusitis and bronchitis.

His widow was then granted Dependency and Indemnity Compensation. In the family narrative, that decision represented a delayed acknowledgment of how severe Jack’s chronic physical illness and related psychological distress had become.

Historical records and article excerpts

Historical Jack Ackland medical and military case documents
Historical material associated with the Jack Ackland case. Click to open the original image.
Read selected historical excerpts and findings

Jack’s reluctance before surgery

Jack wrote that he had been determined not to undergo sinus surgery but eventually consented after considerable pressure. The procedure was described as a submucosal operation involving removal of internal nasal cartilage and bone.

Criticism of the operation

The supplied article states that other doctors later questioned the necessity and extent of the surgery. The post-operative picture included an enlarged nasal cavity, atrophic rhinitis and excessive airflow.

Unable to continue flying

Jack later recalled that the pain became worse with flying and that the symptoms were ultimately severe enough to ground him and end his effort to continue an aviation career.

Permanent disability

A physician who had treated Jack for years described persistent posterior sinus drainage, bronchial illness and subsequent arthritis, and regarded his disability as permanent and total.

Later ENT review

Decades later, Dr. Robert M. Meyers reviewed the historical surgical details and, according to Len Ackland’s article, said the condition resulting from those procedures would now be called Empty Nose Syndrome.

Original article and supporting PDF

The original long-form article was written in 2018 by Jack’s son, journalist Len Ackland. It combines family history with military, medical and VA records and later expert review.

The Story of Stéphane Spinhirny: A Cautionary Tale of Rhinoplasty and Empty Nose Syndrome (1982-2013)

Empty Nose Syndrome case · France

Stéphane Spinhirny (1982–2013): Empty Nose Syndrome After Septoplasty and Revision Rhinoseptoplasty

Stéphane Spinhirny documented severe nasal obstruction sensations, dryness, crusting, insomnia and psychological distress after nasal surgery. His blog, videos and case records remain an important first-person account of post-surgical Empty Nose Syndrome.

Stéphane Spinhirny Empty Nose Syndrome after septoplasty and rhinoseptoplasty
Stéphane Spinhirny — original image from the source page.

Stéphane sought nasal surgery for a combination of aesthetic concerns and functional breathing problems associated with a deviated septum. According to the case summary, his first operation took place in October 2011 and was followed immediately by severe new nasal symptoms. A second reconstructive rhinoseptoplasty followed in October 2012.

Source note: This page is based on Stéphane’s own blog, his video testimony, supporting case material and the summary supplied with the original page. Statements about individual surgeons, informed consent, surgical responsibility and the quality of medical care are presented as Stéphane’s reported views and allegations rather than independent findings.
NameStéphane Spinhirny
CountryFrance
Years1982–2013
First surgerySeptoplasty · October 2011
Second surgeryRevision rhinoseptoplasty · October 2012
Main condition reportedEmpty Nose Syndrome

The surgical journey: from septoplasty to severe post-operative symptoms

Stéphane initially hoped surgery would improve both the appearance of his nose and his breathing. The case summary identifies his first procedure as a septoplasty performed in October 2011.

According to the supplied material, septal cartilage was removed during this first operation. Stéphane later described the outcome in extremely negative terms and believed he had not been adequately informed about the potential consequences.

His symptoms reportedly began immediately after the initial procedure. Instead of the improvement he expected, he experienced a persistent sensation of nasal blockage even though the nasal passages were not necessarily physically obstructed.

Empty Nose Syndrome symptoms, insomnia and declining quality of life

Stéphane described a combination of symptoms consistent with the way Empty Nose Syndrome is discussed in patient accounts: paradoxical obstruction, dryness, crusting, abnormal breathing sensation and severe sleep disturbance.

Paradoxical nasal obstruction A constant sensation that the nose was blocked or that breathing was inadequate despite surgical widening.
Dryness and crusting Persistent dryness became a major source of discomfort after the operation.
Severe insomnia Sleep became so difficult that medication was reportedly required.
Psychological distress Chronic breathing discomfort and sleep loss were accompanied by anxiety, frustration and severe low mood.

Stéphane’s writings show how strongly the physical symptoms influenced his emotional state. He repeatedly expressed frustration that medical professionals did not understand or acknowledge the severity of what he was experiencing.

October 2012: reconstructive rhinoseptoplasty

The case summary describes a second operation in October 2012 with Dr. Miriam Bönisch. This procedure is identified as a rhinoseptoplasty intended to reconstruct the nasal septum.

According to the supplied material, cartilage was taken from the ear and used to reconstruct the septum together with a PDS plate. The procedure followed the earlier removal of septal cartilage during the first operation.

October 2011
Initial septoplasty

Septal cartilage was reportedly removed. Severe nasal symptoms began immediately afterward.

2011–2012
Persistent ENS-type symptoms

Stéphane documented obstruction sensations, dryness, crusting, insomnia and major psychological distress.

2012
Complaint to the medical board

The source summary states that Stéphane filed a complaint but did not pursue broader legal action.

October 2012
Revision rhinoseptoplasty

Ear cartilage and a PDS plate were reportedly used in an attempt to reconstruct the septum.

2013
Stéphane passed away

He was 30 years old. His blog and recordings continued to circulate as part of ENS awareness efforts.

Stéphane Spinhirny’s blog: documenting ENS and warning future patients

Stéphane created a blog focused on his experience with septoplasty, rhinoplasty and post-operative complications. His writing was highly critical of the medical care he received and repeatedly urged prospective patients to research surgeons and procedures carefully.

Stéphane Spinhirny blog about septoplasty, rhinoplasty and Empty Nose Syndrome
Screenshot of Stéphane Spinhirny’s blog. Click the image to visit the original blog.
Recurring themes in Stéphane’s writing

His posts focused on informed consent, careful surgeon selection, the relationship between nasal structures and breathing sensation, the difficulty of obtaining help after a poor surgical outcome, and the emotional consequences of persistent insomnia and breathing discomfort.

One of his recurring warnings was that patients should not assume a seemingly limited nasal procedure will necessarily remain limited to the structure discussed before surgery.

Stéphane’s video testimony archive

Stéphane also recorded video testimony about his symptoms and surgical experience. The two original Blogger-hosted videos from the source page are preserved below.

Impact on quality of life and family

The case summary describes Stéphane’s post-operative quality of life as extremely poor. Persistent insomnia and depression were among the later symptoms highlighted in the source material.

He left behind his parents, Denis Spinhirny and Jeannine Poncin. His experience later became part of wider ENS awareness material, particularly discussions about informed consent and the long-term consequences that some patients report after nasal surgery.

Original sources and supporting documentation

Stéphane’s own blog, YouTube account and supporting case PDF are available below.

Empty Nose Syndrome and the Cost of Cosmetic Surgery: The Story of John Malamos (1967–2010)

Empty Nose Syndrome case history · United States

John Malamos (1967–2010): Empty Nose Syndrome After Revision Rhinoplasty and Inferior Turbinate Reduction

Based on interview notes with John’s brother Thomas, this page documents a life that changed dramatically after revision cosmetic nasal surgery was combined with inferior turbinate reduction.

John Malamos lived in Illinois and, according to his brother’s account, enjoyed a full and active life before two cosmetic nasal operations. The first procedure did not produce the expected result, leading to revision surgery. During that second operation, the surgeon also reduced John’s inferior turbinates. His brother says John had not expected that additional procedure and had not been meaningfully informed about its risks.

Source note: This page is based on interview notes with John’s brother Thomas, family photographs, obituary comments and the linked supporting PDF. Statements about surgical necessity, informed consent, causation and what John would have chosen if fully informed are presented as family-reported views rather than independently verified conclusions.
NameJohn Malamos
LocationIllinois, United States
Years1967–2010
Initial procedureCosmetic nasal surgery
Revision procedureRevision rhinoplasty + turbinate reduction
Later diagnosisEmpty Nose Syndrome

John Malamos before nasal surgery

Thomas described John as a warm, social and energetic person. He loved riding motorcycles and traveling through the western United States with friends. He had a steady relationship, a close circle of friends, family nearby and a satisfying career as an assistant manager at Costco.

His brother’s account emphasizes that John had no comparable history of severe breathing distress, insomnia or major emotional problems before the nasal procedures.

Motorcycles and travel John was passionate about riding and enjoyed long trips with friends across the western United States.
Career and community He was remembered as a respected Costco manager who made colleagues and customers feel valued.
John Malamos memorial photographs and Empty Nose Syndrome story
Original John Malamos image from the source page. Click to open full size.

Revision rhinoplasty and an unexpected inferior turbinate reduction

According to Thomas, John first underwent cosmetic nasal surgery without major pre-existing breathing problems. Because the cosmetic result was unsatisfactory, he later returned for revision surgery.

Thomas says that during the revision, the surgeon also reduced John’s inferior turbinates. The family’s central concern is that this additional procedure was not the reason John entered surgery and that the risks were not adequately explained beforehand.

Thomas shared John’s story as a warning to patients to ask exactly which procedures may be performed and to explicitly discuss whether turbinate surgery is being considered.

Severe symptoms after turbinate reduction

After the turbinate procedure, Thomas described a dramatic change. John developed insomnia, dryness, nasal pain, a persistent suffocating sensation, anxiety and deep emotional distress.

The family believed these symptoms represented Empty Nose Syndrome. John reportedly struggled to understand why his nose could feel unable to breathe despite being physically open.

Breathing and sensory symptoms Suffocating sensation, dryness, pain and a disturbing sense that normal breathing no longer felt automatic or comfortable.
Sleep and psychological burden Severe insomnia, escalating anxiety and a major deterioration in quality of life.
John Malamos obituary comments and memorial photographs
Original memorial and obituary-comment image from the source page. Click to open full size.

How friends and colleagues remembered John

The strongest contrast in the family material is between John’s life before surgery and the period after ENS symptoms emerged. His obituary received numerous comments from coworkers and friends who remembered his warmth, generosity and ability to support others.

“John was one of a kind. The most compassionate and dear friend and boss.”

Kristin Harbke · October 10, 2010

“He always greeted me with an infectious smile and we never failed to share a laugh together.”

Patrick Hayes · October 28, 2010

“I would not be where I am today without John.”

Jeff Wilkalis · August 7, 2011

“We all still miss you so much and remember you by sharing memories of you.”

Ruth Reynolds · July 10, 2023

Thomas said hundreds of coworkers attended John’s funeral, underscoring the strong impression he had made on the people around him.

John Malamos life and memorial photo archive
Original John Malamos photo archive from the source page. Click to open full size.

Searching for answers: Cleveland Clinic, Mayo Clinic and ENS diagnosis

As John’s symptoms worsened, he and his father traveled long distances seeking specialist help. The family account says he was evaluated at major institutions including the Cleveland Clinic and Mayo Clinic.

According to Thomas, John eventually received an Empty Nose Syndrome diagnosis. The family was devastated to learn that no effective treatment or local referral was offered that could meaningfully restore his former quality of life.

Before revision surgery
Active, social and working

John was employed, riding motorcycles, traveling and maintaining close relationships.

Revision nasal surgery
Inferior turbinate reduction added

Thomas says the turbinate procedure was not something John expected when he entered surgery.

After surgery
Severe ENS-type symptoms

Insomnia, dryness, pain, suffocating sensations and emotional deterioration followed.

Later consultations
ENS diagnosis

John sought care at major institutions and, according to the family, was eventually diagnosed with Empty Nose Syndrome.

2010
John passed away at age 43

His family later shared his story to raise awareness of the consequences they associated with the turbinate procedure.

John Malamos obituary and Empty Nose Syndrome memorial
Original John Malamos obituary image from the source page. Click to open full size.

Thomas Malamos’ message about informed consent and ENS awareness

Thomas now shares John’s story to encourage patients to ask detailed questions before nasal surgery. His main message is not to assume that a surgeon will perform only the procedure discussed in broad terms.

He believes John would not have agreed to inferior turbinate reduction if the risks had been clearly explained and if John had been given a meaningful role in the decision.

Thomas also questions why the turbinates were treated during a cosmetic revision at all. Those questions remain part of the family’s interpretation of the case and are presented here as such.

Sources and supporting documentation

The supporting PDF and John’s obituary are linked below so readers can review the underlying material directly.

Yaneiv Oz and Empty Nose Syndrome: A Tragic Consequence of Turbinoplasty

Empty Nose Syndrome case · Israel

Yaniv “Yaneiv” Oz (1992–2018): A Mother’s Account of Empty Nose Syndrome After Nasal Surgery

Toni Carroll’s account describes her son before illness, the nasal surgery he underwent during compulsory military service, the gradual development of insomnia, headaches, throat and breathing problems, repeated medical consultations and the dramatic decline that followed.

Yaniv Yaneiv Oz Empty Nose Syndrome memorial image
Yaniv “Yaneiv” Oz — original image from the source page.

Letter from Toni Carroll, Yaneiv’s Mother

Toni begins by explaining that it is important to understand who Yaneiv was before his deterioration after surgery in order to appreciate how drastic the change became.

Yaneiv was a people person who loved helping with anything, however big or small. He had close friends who had been together since pre-school, was hard working, loyal and always the joker. His mother describes him as having a love of life like nothing she had ever known.

Football was his biggest passion, both playing and watching it. He followed a strict diet and worked out twice a day.

Source context: This page preserves Toni Carroll’s account and the case summary supplied with it. Statements about the operation, turbinate reduction, medical explanations, informed consent and the relationship between surgery and Yaneiv’s later symptoms are presented as reported by the family and source material.
NameYaniv (Yaneiv) Oz
BornJuly 23, 1992
CountryIsrael
Initial surgeryPolypectomy + rhinoplasty
SymptomsInsomnia, headaches, throat problems, suffocation, fatigue
Passed awayOctober 16, 2018 · age 26

Early Breathing Concern and Surgery During Military Service

Yaneiv had said as a teenager that he did not feel much airflow through one nostril, although he was not insistent about it.

When he was 20 and completing his compulsory army service, he told his mother that a doctor had referred him to Hadassah Hospital for what he described as a small operation: a polypectomy.

Toni tried to talk him out of surgery. This was not because she knew anything about Empty Nose Syndrome at the time; she simply had a general belief that once something is surgically altered, another problem can sometimes follow.

Yaneiv was adamant that the procedure was minor and explained how uncomfortable the nasal problem felt.

Toni later learned from her oldest son that Yaneiv had undergone both polypectomy and rhinoplasty.

A polypectomy is a procedure used to remove polyps, which are abnormal tissue growths. In the nose it is often performed endoscopically to relieve nasal obstruction and sinus problems.

The Day After Surgery and the First Years

Toni visited Yaneiv the day after the operation and immediately felt that something was not right. She describes it as a gut feeling, although at the time she dismissed it as part of the normal recovery period.

For a while, Yaneiv appeared to be doing reasonably well. He held down a job, continued working out, attended football matches and signed up for many different courses.

He loved studying different subjects while trying to discover what ultimately interested him most.

Yaniv Oz before and during his Empty Nose Syndrome journey
Original Yaniv Oz image collage from the source page.

Toni recalls that approximately two years after surgery, subtle changes began to appear: slight aggressiveness, headaches and insomnia.

Australia, Cambodia, Bali, Thailand and Europe

Despite the emerging symptoms, Yaneiv still had dreams and ambitions.

He booked a flight to Australia on his own. There he worked for a company with an Israeli man he met and spent a year saving money so he could continue traveling before returning home.

He traveled through Cambodia, Bali and Thailand and also spent time partying in Europe.

His mother remembers being extremely proud of him. He was away traveling for just over a year and a half.

But Toni says it was not the same Yaneiv who returned home.

The Gradual Decline After Returning Home

At first, Yaneiv was still playing football and going to the gym every day.

However, he could no longer hold down a job because of constant throat infections and migraines. He repeatedly returned to doctors, underwent more tests and received more steroids.

According to his mother, he was repeatedly referred for psychiatric help and was told that the problems were in his head.

Yaniv Yaneiv Oz Empty Nose Syndrome case image
Yaniv during the years when his health problems were becoming increasingly difficult.

Yaneiv still had some fight left in him and moved south to stay with his father, hoping that the humidity would help.

He visited a psychologist once. He also tried acupuncture and voice therapy because he believed his voice had changed.

Toni believes that the voice problem may have been connected to the amount of effort he had to use to speak.

Throat Symptoms, Sleeplessness and the Feeling of Suffocation

Yaneiv was awake through the night because of sensations of suffocation and anxiety. The lack of sleep left him groggy, and he caught an hour of sleep here and there whenever he was able.

Whenever the family asked him what he was feeling, he repeatedly answered only: “my throat.”

Toni recalls an experience involving a four-year-old boy in her daughter’s kindergarten class who constantly cleared his throat in a way that reminded the family of Yaneiv.

When her daughter offered the boy water, he said it would not help because it felt like a piece of dry steak was constantly stuck at the back of his throat.

The boy had undergone the same type of operation, and Toni felt that he had managed to describe the throat sensation more clearly than her 26-year-old son had been able to.

Depression increasingly took hold. Yaneiv stopped replying to messages from his closest friends. He could no longer play football because of choking sensations, became sensitive to dairy products and was profoundly tired.

Finding the Empty Nose Syndrome Community

Toni learned that Yaneiv joined a Facebook group for Empty Nose Syndrome only five days before his passing.

He had contact with one member of the group who, Toni believes, helped him finally obtain an appointment with an ENS specialist in Israel.

After years of unexplained symptoms and repeated medical consultations, the appointment represented a possible opportunity to speak with someone familiar with the syndrome.

Yaneiv’s Final Wish and His Mother’s Determination to Help Others

Yaneiv was lost on the day of the specialist appointment.

Toni says that his final wish was for the family to take the surgeon to court, seek justice and try to prevent the same thing from happening to other people.

A lawyer in the extended family initially said she would take on the case and collected the medical documentation, but the action was ultimately not pursued.

Toni explains that she did not feel able to pursue the matter herself because Yaneiv had said so little about exactly what he experienced and had refused to allow her to speak directly with the surgeon.

Even so, she remains determined to help prevent similar outcomes because she feels that she owes that to Yaneiv.

At the end of her letter, Toni writes that she is still trying to come to terms with everything and that her concentration remains severely affected by the loss. She also expresses support for the work being done to raise awareness.

Yaniv Oz Empty Nose Syndrome memorial collage
Original memorial image collage of Yaniv Oz from the source page.
Yaniv Oz family and Empty Nose Syndrome memorial images
Additional original Yaniv Oz image collage from the source page.

Summary of Yaniv Oz’s Case

Name
Yaniv (Yaneiv) Oz
Gender
Male
Date of birth
July 23, 1992
Date of passing
October 16, 2018
Age
26
Country
Israel

Medical Background

Yaniv experienced partial airflow obstruction in one nostril as a teenager but managed it relatively well. At age 20, during mandatory military service, he underwent a polypectomy and rhinoplasty at Hadassah Hospital. The supplied case summary states that the surgery involved turbinate reduction and that he was not informed about the potential consequences.

Postoperative Symptoms

Symptoms began to surface gradually approximately two years after surgery. These included changes in mood, headaches and insomnia. Over time, he developed persistent insomnia, throat and voice problems, nasal dryness and frequent ENT infections.

His mental health deteriorated as the physical problems continued. Depression and isolation increased, and he withdrew from friends and activities he had once loved, including football.

Treatments

Yaneiv consulted multiple doctors, underwent repeated tests and was prescribed steroids. He was also referred for psychiatric care, but the underlying suffering remained unexplained.

He tried alternative treatments including acupuncture and voice therapy, without finding meaningful relief.

Final Days

Yaneiv joined a Facebook Empty Nose Syndrome group only five days before his passing. Through the group, he reportedly received help arranging an appointment with an ENS specialist in Israel.

He was lost on the day of that appointment. The family says he left a final message expressing his wish that they pursue legal action against the surgeon, seek justice and help prevent similar outcomes for others.

Yaneiv Oz Documents and Social Profiles