Statistics - Empty Nose Syndrome mortality 45 cases 1961-2024
ENS-related deaths from completed suicides and systemic body issues, 1988 - 2024
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Jack Ackland, US (1961) Article (External) PDF Blogpost
Was a U.S. military veteran who tragically ended his life at the age of 43. Initially seeking to become a fighter pilot, he suffered from barometric sinusitis, leading to chronic sinus issues. His medical journey took a devastating turn in 1943, when he underwent a turbinate removal (turbinectomy) and a radical antrostomy (Caldwell-Luc surgery) performed by Dr. R.W. Wright. The surgery, which was criticized as "unnecessary," left him with permanent nasal damage and severe symptoms including nasal collapse, empty nose syndrome (ENS), chronic headaches, and respiratory infections. These complications rendered him disabled, ending his military career. Post-surgery, Ackland’s health deteriorated rapidly. He was plagued by severe headaches, respiratory illnesses, and joint infections, all stemming from the complications of his sinus condition. He moved to warmer climates, hoping to alleviate his symptoms, but the physical and psychological toll was profound. His constant pain, depression, and sense of burden on his family led to increasing psychological distress. Despite the debilitating nature of his condition, the Veterans Administration (VA) denied him disability benefits for years, only reversing their decision after his suicide. On Father’s Day in 1961, Jack Ackland took his own life with a 22 caliber handgun in the backseat of his car, devastated by his condition. His son found him, and the tragedy left a lasting impact on his family.
Was a U.S. military veteran who tragically ended his life at the age of 43. Initially seeking to become a fighter pilot, he suffered from barometric sinusitis, leading to chronic sinus issues. His medical journey took a devastating turn in 1943, when he underwent a turbinate removal (turbinectomy) and a radical antrostomy (Caldwell-Luc surgery) performed by Dr. R.W. Wright. The surgery, which was criticized as "unnecessary," left him with permanent nasal damage and severe symptoms including nasal collapse, empty nose syndrome (ENS), chronic headaches, and respiratory infections. These complications rendered him disabled, ending his military career. Post-surgery, Ackland’s health deteriorated rapidly. He was plagued by severe headaches, respiratory illnesses, and joint infections, all stemming from the complications of his sinus condition. He moved to warmer climates, hoping to alleviate his symptoms, but the physical and psychological toll was profound. His constant pain, depression, and sense of burden on his family led to increasing psychological distress. Despite the debilitating nature of his condition, the Veterans Administration (VA) denied him disability benefits for years, only reversing their decision after his suicide. On Father’s Day in 1961, Jack Ackland took his own life with a 22 caliber handgun in the backseat of his car, devastated by his condition. His son found him, and the tragedy left a lasting impact on his family.
Female Patient of Dr. Eugene Kern, US (1988) PDF Video
Kern discusses his patient; View the video linked above where he shares this information:"Fifty four year old white woman, she complained about Stuffiness in her nose since cosmetic rhonoplasty four years earlier. She did have a nasal injury in childhood. She also complained of a symptom of grogginess, and we talked about this, under the table over lunch yesterday. Inability to concentrate. Have you ever seen that in any of your patients? Inability to concentrate because of a nasal disorder. Six months ago she had a reconstructive procedure without any benefit. She had allergy treatment for two years without any improvement. And here you can see, I can't read this, sorry, but this is a psycho evaluation. I sent the patient to psychiatry, and the psychiatrist happened to have been an internist before he became a psychiatrist, and he described her difficulty breathing as dyspnea, and not anxiety related. That's what he said. This person committed suicide. And boy that got my attention. She committed suicide in 1988, and she warned me about it, and that's why I sent her to the psychiatrist"
Male Patient to Dr. Yong Ju Jang in South Korea ended his life (2005?) Video lecture by Yong
In the lecture linked above from 2018, Dr. Yong mentions that one of his ENS patients committed suicide, listen after 8 min 30 seconds. Quote from the video: "This is the patient I mentioned earlier. This is the patient from 13 years ago (2005?). He had sinus problems, and he also underwent some turbinate surgery. I put him on medical treatment and reconstructed his turbinates with conchal cartilage. One day, his family visited me and told me that this man committed suicide. So it was really shocking to me. The incidence we don’t know. It's really difficult to study the incidence."
Sylvain Barthelemy, France (2007) PDF Blog Story word VideoSylvain Barthélemy was a French man who, following nasal surgeries, experienced debilitating complications that led to his death by suicide at the age of 38. Initially suffering from a deviated nasal septum and intermittent nasal obstructions, he underwent a septoplasty and bilateral turbinectomy in 2005. In 2006, he had a second surgery where his middle turbinates were removed and grafted to form new inferior turbinates. These procedures left him with complete turbinate tissue loss and severe complications. After the surgery, Barthélemy began experiencing severe headaches, chronic ENT pain, frequent sinusitis, and sleep disturbances. His symptoms progressed to extreme anxiety, depression, and significant behavioral changes. Physical activities like skiing and paragliding became painful, and he had to avoid dry or dusty environments due to increased sensitivity. The highly experimental grafting attempt to create new inferior turbinates from harvesting his middle turbinates worsened his condition significantly and the grafts were rejected by his body. By 2007, he was on high-dose opioids and under psychiatric care, yet his pain remained unrelenting. Barthélemy’s quality of life drastically declined, and he struggled with constant pain, insomnia, and depression, to the point where he could sleep only a few hours per night. He resorted to placing damp cotton in his nostrils to relieve the air-induced pain and found it difficult to endure confined spaces. After three suicide attempts, he ultimately succeeded by jumping off a 250-meter bridge. His family, especially his brother, emphasized that his death was an escape from unbearable physical suffering. He did not commit suicide; he ended the suffering inflicted on him by his surgeons.
John L. Malamos, US (2010) PDF Blogpost
Male Patient of Dr. Eugene Kern, US (1994) PDF Video
Kern discusses his patient; View the video linked above where he shares this information: Well, here's the next patient that got my attention. 45 year old white male, a banker and founder He was from Iowa. He had septal surgery polypectomy two years ago. He has developed the inability to concentrate the grogginess, if you will. Irritability, difficulty in breathing, and he treated with antibiotics and he was seen by me for evaluation. I just put in a septa button because he had a perforation. There's my operation in 1993 he had a septal perforation and I slipped in a sepal button and he committed suicide too in 1994.Antonio Fernando De Jesus Jacinto, France (Nov 6, 2001) Article External PDF
Antonio Fernando De Jesus Jacinto, a 41-year-old man, is at the center of a tragic incident involving an ENT surgeon. Jacinto, who had been suffering from severe nasal problems following what he described as aggressively performed surgery by Dr. Christian Hamman, felt that the doctor had caused him extensive physical harm. In his suffering caused by the surgery, he attempted to sue Hamman but ultimately failed in his legal pursuit. Feeling desperate and without recourse, Jacinto took matters into his own hands. On Tuesday evening, he entered Dr. Hamman’s medical office on Avenue de Flandre (19th arrondissement) and confronted the surgeon. During this confrontation, Jacinto brandished a .25 caliber automatic pistol and shot the doctor in the chest. Following the attack, Jacinto reportedly stated, “I told you I would get you,” before tragically taking his own life with the same weapon. A patient who was present during the incident recalled: “I was sitting in the doctor's chair when Jacinto entered. I heard a first gunshot. Then the doctor lunged at him as he brandished his gun. A second shot rang out, and that was when the doctor collapsed. I found myself face to face with him. We locked eyes, and I thought he was going to kill me. But then he raised the hand that held his weapon, pressed the barrel against his temple, started to sweat, and pulled the trigger. It was only fifteen minutes later that I realized I had been shot in the ankle.” Jacinto died; the doctor survived and still practices today.
In the lecture linked above from 2018, Dr. Yong mentions that one of his ENS patients committed suicide, listen after 8 min 30 seconds. Quote from the video: "This is the patient I mentioned earlier. This is the patient from 13 years ago (2005?). He had sinus problems, and he also underwent some turbinate surgery. I put him on medical treatment and reconstructed his turbinates with conchal cartilage. One day, his family visited me and told me that this man committed suicide. So it was really shocking to me. The incidence we don’t know. It's really difficult to study the incidence."
Sylvain Barthelemy, France (2007) PDF Blog Story word Video
John Malamos lived a joyful and active life in Illinois, USA, until complications from a second cosmetic surgery transformed his life into one marked by suffering. Initially, he underwent a rhinoplasty to address cosmetic concerns, but due to errors in the initial surgery, he required a revision. During this second procedure, the surgeon decided to reduce John’s nasal inferior turbinates without informing him of the potential risks. This “add-on” operation, which was unrelated to the cosmetic revision, led John to develop Empty Nose Syndrome (ENS), a painful and severe condition that causes feelings of suffocation, extreme nasal dryness, insomnia, anxiety, and depression. ENS made John’s once fulfilling life unbearable, robbing him of sleep and the ability to experience normal respiratory sensations.
Prior to these surgeries, John was a beloved figure in his community. A devoted motorcyclist, he frequently traveled with friends across the western United States. He had a stable career as an assistant manager at Costco, where his kindness, warmth, and compassionate leadership were deeply valued by colleagues. Many of John’s coworkers and friends continued to share fond memories of him years after his passing, highlighting his positive impact on their lives. These memories paint a picture of a man who was deeply connected with those around him, always offering support and a caring ear. After the development of ENS, John’s physical suffering led to profound psychological distress. In search of relief, he and his father consulted several renowned medical institutions, including the Cleveland Clinic and Mayo Clinic, only to find that no treatments were available for his condition. The hopelessness John felt, combined with the sleep and respiratory problems he experienced, led to anxiety and depression. He ultimately sought help at a mental health facility, but his distress persisted as his condition was rooted in physical pain rather than psychological causes.
John’s mental anguish eventually led him to attempt suicide multiple times, and tragically, he succeeded at the age of 43. His family was devastated but successfully advocated for his funeral to be held within the Greek Orthodox Church, arguing that his suffering was due to a physical medical condition. His brother, Thomas, have shared John’s story as a cautionary tale about the risks of nasal turbinate reduction and the necessity of informed consent in medical procedures. Thomas hopes to prevent similar tragedies by raising awareness about ENS and encouraging patients to actively participate in medical decision-making, particularly when it comes to unnecessary or unrequested procedures. Through sharing memories and photos from John’s happier days, Thomas aims to honor his brother’s legacy as a kind and vibrant person whose life was tragically cut short by his surgeon.
Ludovic Sery, France (2011) PDF Blog Testimony (word) Video
Ludovic Sery, born in 1980 in France, was a vibrant and active man who worked as a forklift driver. Before his life took a tragic turn due to a surgical procedure, he led a normal life with no history of mental illness, enjoying sports and spending quality time with family and friends. In 2002, Ludovic underwent a bilateral turbinectomy to address his nasal congestion caused by allergic rhinitis. Unfortunately, just three months post-surgery, he began to experience a cascade of severe symptoms associated with Empty Nose Syndrome. His nose frequently became inflamed, and he suffered from chronic dryness in his throat and mouth. He found it difficult to breathe and experienced nightly headaches, purulent rhinorrhea, and unpleasant odors. Additionally, he became increasingly sensitive to temperature changes, compounding his distress. Despite seeking help from multiple healthcare providers, Ludovic faced skepticism regarding his complaints. His initial surgeon, whose name remains unknown, dismissed his symptoms, asserting that the surgery had been successful. He was prescribed anti-inflammatory medications and saline rinses for relief. To manage his worsening depression, he received prescriptions for anxiolytics, antidepressants, and sleeping pills. After a first suicide attempt in 2005, he underwent a psychiatric evaluation and was hospitalized for a month. As Ludovic’s health deteriorated, he felt increasingly isolated and abandoned. His quality of life plummeted, and he lost his job in 2008 due to frequent absenteeism. Feeling like a shadow of his former self, he decided to undergo another surgery in June 2009, where he received acrylic implants in his nose, performed by Dr. Ayoun. Although he reported some improvements, such as reduced dryness and fewer headaches, his overall existence remained fraught with pain and suffering. Ludovic experienced a significant decline in his quality of life after the surgeries. What was once manageable became unbearable. After years of fighting for relief and recognition of his symptoms, Ludovic tragically took his life in 2011 at the age of 31. He left behind a grieving family that mourned the loss of their beloved son and brother. Despite the tragic outcome, Ludovic’s story serves to raise awareness about Empty Nose Syndrome and the potential risks associated with surgical procedures, particularly in the field of otorhinolaryngology. He hoped that others would understand the risks that can accompany seemingly routine surgeries and became a voice for those suffering in silence. His journey highlights the crucial need for proper information and support for patients both before and after surgical interventions to prevent similar fates.
Stéphane Spinhirny, France (2013) PDF Blogpost
Mélisa Champion, Canada (2015) Video PDF Blog Story (word)
Raphaël Goblet, Belgium (2013) PDF Blog Story (word) Video
Raphaël Goblet was born on January 25, 1987, in Brussels, Belgium, and resided in Chaumont-Gistoux. Despite having a manageable quality of life prior to surgery, he faced devastating changes after undergoing a septoplasty and turbinate reduction. The procedures were performed by Dr. Philippe Rombaux, who not only conducted the surgery but also inadvertently caused a perforation in Raphaël's septum. Following the initial operation, Raphaël developed Empty Nose Syndrome, a condition characterized by severe breathing difficulties and a myriad of debilitating symptoms such as nasal dryness, insomnia, and anxiety. In hopes of alleviating his condition, he sought treatment from Dr. Gilles Ayoun, who proposed the insertion of acrylic nasal implants made from polymethyl methacrylate (PMMA). Unfortunately, these plastic implants were rejected by Raphaël's body, leading to further complications. Raphaël's struggles with ENS greatly impacted his mental health, leaving him feeling suffocated and desperate. His quality of life deteriorated, transforming from manageable to unlivable. He experienced severe insomnia and profound distress, which ultimately culminated in his tragic decision to take his own life on March 7, 2013, at the age of 26. It is crucial to note that Raphaël, like many others who undergo similar procedures, was not adequately informed about the potential risks associated with turbinate reduction and septoplasty. Approximately 20% of such surgeries are performed aggressively enough to lead to ENS, and during Septoplasty many patients remain unaware of that their nasal turbinates would be operated on. Raphaël's death highlights a grave issue within the medical community regarding the lack of accountability and the need for greater awareness of the risks involved in nasal surgeries. The aftermath of his passing continues to resonate, driving discussions about patient rights and the ethical responsibilities of surgeons. Stéphane Spinhirny, France (2013) PDF Blogpost
Stephane Spinhirny was a French man born in 1982 who tragically ended his life 2013 at the age of 30. Before his death, he underwent a septoplasty in October 2011 performed by Dr. Gilles Ayoun, followed by a rhino-septoplasty in October 2012 by Dr. Bönisch. Both procedures were intended to address nasal congestion, a problem he had been experiencing, but he was not adequately informed about the potential consequences of these surgeries. Post-surgery, Stephane developed symptoms characteristic of Empty Nose Syndrome (ENS), including a constant sensation of nasal blockage, dryness, crusting, severe insomnia, and significant psychological distress. He described the surgeries as a "massacre," highlighting the toll it took on his mental health and quality of life. Before the surgeries, he managed his health adequately, but after the operations, his quality of life became unlivable. Stephane sought treatment for his symptoms with medications like Nasonex and Derinox but experienced ongoing insomnia and depression. He left behind his parents, Denis and Jeannine, and although he filed a complaint with the medical board in 2012, he did not pursue legal action. The aftermath of his condition profoundly impacted his family, increasing awareness of the risks associated with such surgical procedures. In a heartfelt farewell, Stephane shared his experiences in a testimony.
Quote from Stéphane Spinhirny's blog:
"The person most likely to kill you is not a relative or a friend or a mugger or a burglar or a drunk driver. The person most likely to kill you is your doctor"; Professors Even estimates that 100,000 deaths occur accidentally in hospitals each year. "doctors have a lower intellectual level than the rest of the population; they are stupid, narrow minded, speak in a pseudo-initiate dialect, and are prisoners of an autocratic way of thinking that makes them believe that they hold the exclusive truth"
Brett Helling, US (2015) PDF Blog Story (word) Video Video Interview
Brett Helling was a 36-year-old musician living in Worthington, Ohio, a suburb of Columbus, when his life took a catastrophic turn following what he believed was a routine surgical procedure. On January 29, 2015, he celebrated his birthday, surrounded by family and friends who reached out to him on social media. However, instead of joy, Brett felt the suffocating weight of an invisible burden that had plagued him for nearly a year. Brett had struggled with allergies and chronic sinus infections since middle school, leading him to seek help from an ear, nose, and throat (ENT) specialist in February 2014. He underwent a septoplasty, a common procedure to correct a deviated septum, along with an unexpected turbinate reduction. This additional procedure involved the removal of the turbinates, vital structures in the nose that warm, moisten, and filter the air we breathe. Despite its routine nature, this surgery marked the beginning of Brett's nightmare. In the months following the surgery, Brett experienced alarming symptoms. Initially, he felt as if his nose was “too open,” a sensation that evolved into a constant struggle for breath. He could no longer breathe comfortably through his nose; instead, each breath became a conscious, laborious effort. His sense of self began to unravel as his emotions dulled, leaving him feeling disconnected from the world. Friends and family, once a source of support, grew increasingly worried as he withdrew from social life and band rehearsals, spending more time in his childhood home. Despite seeking medical help, Brett faced disbelief from doctors, many of whom dismissed his concerns as mere anxiety or depression. Even when he self-referred to the emergency room, where he pleaded for help, he was met with indifference. The medical community failed to recognize the severity of his condition, a fact that deepened his despair. In his desperation, Brett turned to homeopathic treatments and injections that only provided temporary relief. By late 2014, his situation had worsened, resulting in insomnia, severe nasal dryness, and feelings of suffocation. He felt trapped in a life that had become “unlivable,” characterized by anxiety, fatigue, and a deep sense of hopelessness. As Brett grappled with his new reality, he also faced the breakdown of his relationships, including a significant one with his girlfriend. He moved back in with his parents, voicing his anguish, “I can’t live like this. This is miserable. I want my life back.” On February 16, 2015, four days before the one-year anniversary of his surgery, Brett took his own life by jumping from the Jeremiah Morrow Bridge, the tallest in Ohio. In a poignant farewell letter, he wrote about his suffering from empty nose syndrome, urging that it should not be dismissed as mere depression. “This disease is very real, is untreatable, yet 100% preventable,” he stated.Priscilla Robert, France (2015) Article External PDF Blog Testimony Video
Priscilla Robert’s story is a tragic account of suffering that began with a simple medical condition and culminated in a life altered irreparably by surgical intervention. Born in 1985 in France, Priscilla was an ordinary individual facing the challenges of sinusitis, eye pain, and asthma. Her situation began to deteriorate in 2009, when her sinusitis flared, leading her to seek multiple medical opinions. Unfortunately, her path to recovery took a devastating turn. Initially, she underwent laser treatment for her swollen turbinates in March 2009. However, despite the surgeon’s assurances of improved breathing, her symptoms persisted. In April of the same year, after expressing her dissatisfaction with the results, Priscilla underwent a more invasive procedure: a turbinate reduction and septoplasty. This surgery was intended to alleviate her ongoing nasal obstruction, yet it marked the beginning of a nightmare that would haunt her for years. Post-surgery, Priscilla experienced a cascade of troubling symptoms. What should have been a hopeful step toward relief instead led to worsening pain, severe headaches, and frequent anxiety attacks. She felt as if her life was slipping away, her mental and physical health rapidly declining. Despite seeking emergency care and additional opinions, she was met with dismissiveness from medical professionals who refused to connect her debilitating condition to the recent surgeries. This experience left her feeling isolated and gaslit, as her pleas for help went unheard. By 2011, her quality of life had deteriorated to the point where she could barely eat or sleep. She had lost her sense of smell and faced constant nasal obstruction, living in a state of hyperventilation with a dry nose that felt perpetually on fire. The pressure in her forehead and the sensation of suffocation while lying down became unbearable. Despite her suffering, Priscilla found a small measure of solace in a support group for those affected by Empty Nose Syndrome (ENS), a condition often overlooked by the medical community. Sadly, Priscilla's physical and mental anguish culminated in her suicide on August 6, 2015, at the age of 30. Throughout her ordeal, she expressed regret for having consented to the surgeries, stating that had she been informed of the potential risks, she would have never gone through with them. Her testimony stands as a stark reminder of the complexities and consequences of nasal surgery, highlighting the need for greater awareness and understanding of ENS.Mélisa Champion, Canada (2015) Video PDF Blog Story (word)
Mélisa Champion, born in 1982, was a vibrant and sociable young woman from Quebec who aspired to become a flight attendant and had a deep passion for travel. Her life, however, took a tragic turn after undergoing a surgical procedure that was meant to enhance her quality of life. In 2007, after experiencing persistent ear pain while traveling, Mélisa sought medical advice and was diagnosed with a deviated nasal septum. This led her to an ENT specialist who recommended a septoplasty, which she believed to be a straightforward procedure. Unbeknownst to Mélisa, the operation was far more invasive than she was led to believe. In addition to the septoplasty, she underwent a complete septorhinoplasty and a bilateral reduction of her inferior turbinates through cauterization. If she had been fully informed about the extent of the surgery, she would have likely refused it. The procedure took place on November 11, 2007, marking the start of a long and painful struggle with Empty Nose Syndrome. Following the surgery, Mélisa began to experience severe nasal dryness and a host of debilitating symptoms, including facial, eye, ear, and throat pain, along with recurring headaches. The loss of her turbinates led to unfiltered air passing through her nasal passages, resulting in significant allergies and asthma attacks. In her own words, she described the experience as feeling like her lungs were "frozen." Desperate for relief, Mélisa began consuming hot water and breadcrumbs, as these offered some alleviation for her lung pain. By 2008, her condition had worsened, leading her to receive allergy vaccines in an attempt to manage her symptoms. However, she soon lost her job and had to return to her childhood home, where her parents, Marcelle and Jean-Yves, provided support. In 2013, her health took a turn for the worse, culminating in an anaphylactic reaction that required urgent hospitalization. In May 2015, Mélisa was informed by another ENT that she had developed total paralysis of her sinus functions, and her nasal tissues were dead with no possibility of recovery. The doctor advised against any further surgeries due to the severe atrophy of her mucous membranes. By this time, Mélisa was reliant on an AIRVO device, an integrated flow humidifier that helped her breathe by warming and humidifying the air entering her lungs. This machine became essential to her survival as it mitigated the cold, dry air that aggravated her bronchial tubes and lungs, leading to painful asthma attacks. Despite her chronic condition, Mélisa sought solace in small joys, such as spending time with loved ones, reading, and listening to music. She documented her struggles in a heartfelt video message to raise awareness about ENS and warn others about the potential risks associated with sinus surgeries. Throughout her battle with this debilitating syndrome, she emphasized the lack of understanding and recognition from the medical community regarding ENS and urged others to seek second opinions before undergoing such surgeries. Mélisa's mental health was heavily impacted by her suffering. She faced a long period of decline, experiencing a profound sense of loss not only regarding her health but also her ability to work and enjoy life as she once did. In her final days, she expressed a deep acceptance of her condition and prayed for peace in the afterlife, free from suffering. Tragically, Mélisa Champion passed away on May 23, 2015, at the age of 33. Her death was attributed to the long illness caused by ENS, and her parents remain advocates for awareness and recognition of the syndrome, hoping to prevent others from enduring similar fates. The financial burden of her condition also weighed heavily on her family, as Mélisa had been in need of a transplant procedure available only in the United States or Germany, which would have cost over $50,000. Despite efforts to raise funds, she was unable to receive the necessary intervention. Mélisa's story serves as a heartbreaking reminder of the importance of informed consent in medical procedures and the devastating consequences of ENS. Her legacy lives on through her family's advocacy for greater recognition of this syndrome, aiming to shed light on the plight of those affected by it.
Di Yuemei (狄月媚), China (2016) PDF
At 54, Di Yuemei, a talented painter and poet, could no longer bear her suffering from ENS, a testament to the pain that many endure.
Liu Wentao (刘文涛), China (2016) PDF
Liu, aged 23 from Dalian, faced unbearable suffering from ENS, tragically ending his life.
Zhang Rui (張瑞), China (2016) PDF Article (internal)
Zhang Rui was a young woman who worked in a field related to construction, a job that required physical strength and resilience. She was 27 years old at the time of her tragic death and was preparing to get married, indicating a supportive family environment. Zhang had completed her education in a vocational school, which equipped her with the skills necessary for her trade. Outside of work, she enjoyed outdoor activities and spending time with friends, but her life took a drastic turn following a surgical procedure. Zhang underwent surgery to address her chronic rhinitis, a common condition that affects many individuals. The operation was performed by a doctor whose name is not specified. Unfortunately, the procedure led to the development of Empty Nose Syndrome, a condition characterized by a sensation of nasal emptiness, difficulty breathing, and a range of psychological issues. Following the surgery, Zhang experienced severe symptoms, including a dry and cold nasal cavity, hyperventilation, and secondary issues such as insomnia and depression. The impact of ENS on Zhang's mental health was profound. She felt abandoned and misunderstood, leading to feelings of despair and anger. Her sleep was significantly affected, as she struggled with insomnia and anxiety, making it difficult for her to function in her daily life. Despite her efforts to seek help, including trying various treatments, injections, and possibly implants, she found little relief from her symptoms. Zhang was not adequately informed about the risks associated with the surgery prior to undergoing the procedure. This lack of information contributed to her feelings of betrayal and hopelessness. It was approximately half a month after the surgery that her problems began to escalate, and she ultimately succumbed to the overwhelming pain and despair. Tragically, Zhang Rui took her own life by jumping from a building, a decision that reflects the depths of her suffering. She was only 27 years old at the time of her death, leaving behind a family that was devastated by the loss.Sarah J Ogden, US (2017) PDF
This case is currently under investigation. Sarah Ogden was born in 1994 and tragically passed away in 2017 at the age of 22. She underwent likely a septorhinoplasty with turbinate reduction. Following these procedures, she developed Empty Nose Syndrome which severely impacted her quality of life, rendering it unlivable. Despite attempts at treatment, including two Alloderm transplants performed by Dr. Steven Houser, Sarah ultimately took her own life.Chen Zhidan (生陈志聃), China (2017) PDF
A student at Shandong University, Chen faced significant challenges related to ENS.
Scott Gaffer, US (2018) PDF Blogpost Video External
Scott Gaffer, born in 1988, was a talented engineer living in Austin, Texas, who tragically succumbed to the profound challenges of Empty Nose Syndrome (ENS). A bright and thoughtful individual, Scott was known for his intelligence, sense of humor, and compassion. Despite his promising career and close-knit friendships, he faced immense suffering due to a surgical procedure he underwent in 2010. In 2010, Scott had a turbinoplasty and septoplasty to address recurrent sinus infections and a deviated septum. The surgery, intended to improve his breathing and resolve a long-standing blockage in one nostril, was performed by a female surgeon initially, followed by Dr. Brent A. Senior and Dr. Das in subsequent procedures. Unfortunately, Scott was not fully informed about the potential consequences of the surgery, which included possible nerve damage and the development of ENS. Scott's health deteriorated rapidly after the surgery. Immediately following the procedure, he experienced a complete loss of airflow resistance and struggled with various symptoms, including severe gastrointestinal issues, sleep apnea, and debilitating mental health challenges. His quality of life, once good, became unlivable as he faced sleepless nights, anxiety, and a sense of hopelessness. He frequently turned to online forums to share his experiences and treatments, hoping to connect with others facing similar struggles. In these interactions, Scott displayed a desire to help others navigate their suffering, illustrating his compassionate nature. His efforts included experimenting with various supplements and medications, seeking the help of multiple specialists, and sharing the results with the ENS community. Despite his resilience, Scott's condition continued to worsen. He felt increasingly isolated as he struggled to articulate his suffering to friends and family, who often could not understand the invisible nature of his illness. This disconnect weighed heavily on him, leading to feelings of despair. In a heartfelt farewell letter, he expressed his pain, stating, "my health broke before my spirit," revealing the deep emotional toll that ENS had taken on him. Scott's mental health deteriorated significantly over the years, particularly after witnessing his peers progress in life while he remained trapped in his struggles. He often lamented that he could no longer partake in the joys of a typical thirty-year-old’s life, such as dating and career advancement. These realizations contributed to his overwhelming sense of hopelessness. On September 21, 2018, just one month after turning 30, Scott tragically took his own life. He left behind a family that included his parents, siblings, and grandparents, all of whom loved him dearly. In the wake of his death, Scott’s mother, Beth, courageously shared his story to raise awareness about the struggles faced by ENS sufferers. She emphasized the importance of understanding and supporting loved ones grappling with this debilitating condition.Yaniv Oz, Israel (October 2018) PDF Blogpost
Yaniv Oz, born in 1992 in Israel, was a vibrant and lively young man who had a deep love for football, strict workout routines, and a wide circle of friends dating back to his preschool days. He was known for his hard work, loyalty, and fun-loving personality. As a teenager, Yaniv felt a slight obstruction in one nostril but didn't see it as a serious problem. At age 20, during his compulsory military service, he was referred to Haddasah Hospital for a polypectomy, a procedure to remove nasal polyps, which also involved a rhinoplasty. He was not informed of potential risks or the consequences of the procedures, including the possible loss of vital nasal tissue. For two years after the surgery, Yaniv seemed to recover well, continuing with football, gym sessions, and pursuing various studies. However, around 2014, symptoms began to emerge, aggression, headaches, and insomnia. Despite traveling and living abroad for over a year, Yaniv's health deteriorated upon his return. He experienced recurring throat infections, migraines, and overwhelming fatigue, which made it impossible for him to hold a job. His throat felt constantly obstructed, making it difficult for him to breathe or speak without straining. As his physical condition worsened, Yaniv also suffered from severe insomnia, suffocation, and anxiety. Doctors repeatedly told him his symptoms were psychological, offering psychiatric help and steroids, but Yaniv knew his condition was more than just mental. Despite trying various treatments, including acupuncture and voice therapy, his quality of life declined rapidly. Depression set in, and he isolated himself from friends and family, unable to play football or lead the active life he once loved. In the days leading up to his suicide, Yaniv joined a Facebook group for individuals with Empty Nose Syndrome. He managed to secure an appointment with a specialist, but tragically, on the day of the appointment in 2018, Yaniv took his own life by hanging at the age of 26. Yaniv left a farewell letter, requesting that his family seek justice against the surgeon responsible for his operation, hoping to prevent others from undergoing the same suffering. His death had a devastating impact on his family and raised awareness about the severe consequences of nasal surgeries like turbinate reduction that can lead to ENS.Doloretta Ruggeri Lodge, US (2019) PDF Video external Blogpost
Doloretta Lodge, affectionately known as Dory, was born in 1961 and passed away in 2019 at the age of 57. Prior to her life-altering surgery in December 2018, Dory was a vibrant and caring person who worked hard to support her family, though she was not employed at the time of her death. She was known for her warmth and dedication to her loved ones, including her husband, children, and grandchildren. Family gatherings and home-cooked meals were her greatest joys, and she enjoyed walking her dog daily. In late December 2018, Dory underwent a routine turbinate cauterization, a procedure performed by an ENT specialist aimed at alleviating her chronic nasal issues. Unfortunately, she was not informed of the potential risks or consequences associated with this surgery. Immediately following the procedure, Dory began to experience severe symptoms. She described her condition as feeling like her nose had "a million little cuts," leading to dryness, shortness of breath, and suffocation. Sleep eluded her; she could barely manage ten to thirty minutes of rest each night, and her lack of sleep drastically affected her overall well-being. As her condition deteriorated, Dory sought help from her doctor multiple times, only to be met with dismissive attitudes. Physicians insisted her issues were psychological, attributing her suffering to depression or anxiety, rather than recognizing the physical distress caused by her nasal surgery. This repeated gaslighting deeply affected her mental health, leading her into a spiral of hopelessness and despair. Despite trying numerous treatments, including antidepressants and various remedies like saline solutions and humidifiers, nothing provided relief. Dory's frustration grew as she felt increasingly isolated from her family and friends, unable to engage with them due to her debilitating symptoms. In her search for answers, Dory discovered the term "Empty Nose Syndrome" (ENS) online, which aligned with her symptoms. She eventually managed to schedule a consultation with a doctor, hoping for a procedure that could alleviate her suffering. Tragically, just days before her appointment, she had a discouraging phone call with a surgery coordinator who informed her that the procedure might not completely resolve her issues. This news crushed her spirit; Dory felt her last glimmer of hope extinguished. Over the three months following her surgery, Dory's life changed dramatically from a loving mother and grandmother to a person consumed by pain, anxiety, and despair. On March 21, 2019, after weeks of suffering and feeling hopeless, Dory took her own life. Her family was devastated by the loss, and her story prompted a community outcry, raising awareness about the severe risks of seemingly routine nasal surgeries and the implications of ENS. Dory's tragic experience underscores the critical need for informed consent and compassion within the medical community. Her story serves as a poignant reminder of the importance of listening to patients and recognizing empty Nose Syndrome as a potential consequence of turbinate reduction.Tisoy Briones, Philippines 2019 (Orlando Jr Kangadil Briones) PDF
Tisoy Briones (Orlando Jr Kangadil Briones) was a 27-year-old man from the Philippines, born in 1992. He worked as a salesman at a Vans retail store in Saudi Arabia. His life took a tragic turn after undergoing nasal surgery in 2019, which resulted in the debilitating condition known as Empty Nose Syndrome (ENS). Tisoy had hypertrophied nasal turbinates, causing breathing difficulties, and he underwent turbinate reduction surgery at Al Yousif Hospital in Khobar, Saudi Arabia. The surgeon, Dr. Emadeldein Zefar, performed bipolar cauterization and submucosal resection of the inferior turbinates. Unfortunately, Tisoy was not informed about the possible consequences of the procedure. Immediately after the surgery, Tisoy began experiencing severe symptoms, particularly a constant sensation of suffocation. His condition worsened rapidly, leaving him unable to sleep and causing extreme physical weakness. Despite receiving some treatment, including normal saline, Tisoy’s quality of life deteriorated drastically. In just 1.5 months post-surgery, his previously manageable life became unbearable. Unable to work due to his illness, Tisoy found himself stranded in Saudi Arabia, without the financial means to return home. His employer, unfamiliar with his condition, offered no support. Isolated from his family, including his wife, Celyn Briones, and their daughter, Tisoy's situation became increasingly desperate. Sadly, he ended his life in Saudi Arabia in 2019, leaving his family devastated. His parents struggled to bring his body home, and his death brought attention to the risks of turbinate surgeries.Marcio Goulart was born on October 9, 1988, in Brazil, where he worked as a successful English teacher. He led a fulfilling life before undergoing nasal surgery in 2018, a procedure that forever changed his existence. Marcio had a bilateral lower turbinectomy with septoplasty, during which 90% of his inferior turbinates were removed. The operation, performed by Dr. Andre Luiz Gomes de Araujo at Clinica Otorrinos Centro Medico in Brazil, left him permanently disabled and struggling with Empty Nose Syndrome. Post-surgery, Marcio faced overwhelming symptoms, including daily feelings of suffocation, panic attacks, and constant obstruction in his nose, which he compared to breathing through tiny straws. His condition left him unable to perform simple tasks, including walking without feeling choked. Despite his suffering, Marcio's family did not fully comprehend the severity of his condition. Marcio sought help from several doctors, including Dr. Piazza in Italy, who refused to operate due to concerns that further surgery might worsen Marcio's condition. This refusal led to a deep depression, and Marcio survived an initial suicide attempt soon after. Active on ENS forums, he shared his struggles and explored treatment options, including implants from Dr. Das. However, financial constraints prevented him from pursuing further medical interventions. In isolation and despair, Marcio purchased a gun online, revealing his intentions to a few friends. On April 25, 2020, after posting a farewell message on Facebook, Marcio ended his life at the age of 32. His death shocked the ENS community, where he was a beloved member, known for his kindness and openness. His tragic story reflects the extreme mental and physical toll of ENS, and the severe consequences of turbinate reduction surgery. Marcio's suffering underscores the importance of thoroughly informing patients about the potential risks of such surgeries, and the need for better understanding and treatment of ENS.
Christian Bruhn, Germany (2020) FPD External Video Internal Video
Christian Bruhn was a 40-year-old man from Germany who tragically took his life in 2020, following complications from a surgical procedure. Born in 1980, he underwent a turbinate reduction surgery in 2019, performed by Dr. Seong-Mun Hong, MD, PhD, at GNG Hospital. The surgery, which costed $10,000, was poorly executed, leading to severe complications that were not properly communicated to him beforehand, as he was not informed about the potential risks and consequences. Immediately after the surgery, Christian experienced distressing symptoms, including feelings of suffocation and a sensation that he had “two holes in the nose,” describing it as if he could “put a train inside or a truck.” As time went on, his condition worsened, leading to an unbearable quality of life. He struggled with a constant sense of suffocation, insomnia, nasal bleeding, and a profound lack of energy and hope. On February 9, 2020, he expressed his despair by stating his immediate resignation from all positions, highlighting the severity of his mental health decline. In an attempt to alleviate his suffering, Christian received hyaluronic acid injections as preparation for possible implants, planning to consult with Dr. Piazza shortly before his death. However, despite these efforts, he found life increasingly unlivable. Seven months after the surgery, Christian made the tragic decision to end his life, leaving behind a farewell video message that detailed his ongoing suffering and frustration. In this video, he expressed his despair over the failed surgery and the daily pain he endured.
Christian Bruhn was a 40-year-old man from Germany who tragically took his life in 2020, following complications from a surgical procedure. Born in 1980, he underwent a turbinate reduction surgery in 2019, performed by Dr. Seong-Mun Hong, MD, PhD, at GNG Hospital. The surgery, which costed $10,000, was poorly executed, leading to severe complications that were not properly communicated to him beforehand, as he was not informed about the potential risks and consequences. Immediately after the surgery, Christian experienced distressing symptoms, including feelings of suffocation and a sensation that he had “two holes in the nose,” describing it as if he could “put a train inside or a truck.” As time went on, his condition worsened, leading to an unbearable quality of life. He struggled with a constant sense of suffocation, insomnia, nasal bleeding, and a profound lack of energy and hope. On February 9, 2020, he expressed his despair by stating his immediate resignation from all positions, highlighting the severity of his mental health decline. In an attempt to alleviate his suffering, Christian received hyaluronic acid injections as preparation for possible implants, planning to consult with Dr. Piazza shortly before his death. However, despite these efforts, he found life increasingly unlivable. Seven months after the surgery, Christian made the tragic decision to end his life, leaving behind a farewell video message that detailed his ongoing suffering and frustration. In this video, he expressed his despair over the failed surgery and the daily pain he endured.
Christopher Supalla, US (2021) PDF Blog Story (word) Full Video Short Video
Christopher Supalla was a 32-year-old accountant from Portland, Oregon, working at Precision Castparts Corp. He lived an active life filled with outdoor adventures such as downhill mountain biking, rock climbing, and off-road driving in his Jeep. Chris had a loving family—his parents, Mary and Brian Supalla, and two sisters, Kara and Laura. In 2021, Chris had been experiencing nasal congestion. After consulting with three doctors, he underwent a septoplasty and turbinate reduction surgery at Oregon Health & Science University (OHSU) under the care of Dr. Timothy L. Smith. Chris was reassured by Dr. Smith, who explained that he had never encountered ENS in his practice and that only 1-2 millimeters of turbinate tissue would be removed. However, after the surgery, Chris began experiencing devastating symptoms. He described feeling as though there was a plastic bag over his head, constantly gasping for breath, and suffering from a suffocating sensation. His nose felt dry, painful, and empty, with no airflow resistance—typical signs of ENS. Chris could no longer sleep, eat properly, or speak without difficulty. Every attempt at rest resulted in him jolting awake as his body panicked, thinking it wasn’t breathing. Despite reaching out to his medical team, including Dr. Smith, Chris was repeatedly told that ENS was unlikely. His family also struggled to have Chris’s condition recognized, and OHSU refused to formally diagnose him with the syndrome. Chris’s suffering, however, was very real and overwhelming. He documented his deteriorating condition in text messages to his mother, Mary, describing his increasing fear of being alive. In the three months following the surgery, Chris’s mental and physical health spiraled. He experienced a sense of suffocation so intense that it drove him to despair. On the day of his suicide, he left a heartbreaking note for his family, apologizing for his decision but explaining that the suffering was too much to bear. Chris ended his life by hanging, with his death certificate listing asphyxia due to ligature hanging as a consequence of ENS. Chris’s death left his family devastated. They have since advocated for greater awareness of ENS and the need for better patient education regarding its risks. Chris’s story serves as a tragic reminder of how misunderstood and debilitating this condition can be, leaving those affected with few treatment options and a lifetime of suffering.Robert Byrnes, US (2021) PDF Blog Story (word) Video
Robert Gerard Byrnes was born on December 13, 1972, in the Bronx, New York, and spent most of his life in Yonkers, NY. He was a dedicated police officer, having started his career in 2000 with the MTA Police. Robert later joined the Rye Brook Police Department and became a Sergeant in the Yonkers Police Department in 2007. He was deeply loved by his family, which included his wife, Sheila, his parents, Robert and Kathleen Byrnes, and his siblings, Raymond and Valerie. Robert was well-educated, having graduated from Archbishop Stepinac High School and earning a degree in Criminal Justice from John Jay College, followed by a Master’s in Physical Education from Queens College. Known for his love of jogging, boxing, and painting, he was also passionate about his Irish heritage, which he celebrated during visits to Counties Mayo and Monaghan. Robert was a cherished uncle to 14 nieces and nephews and a devoted friend to many in his community. In 1997, Robert underwent a septoplasty and turbinate reduction to alleviate breathing problems caused by a deviated septum. The surgery initially provided relief; however, in April 2020, during the COVID-19 pandemic, Robert began experiencing severe health issues related to Empty Nose Syndrome (ENS), a condition that often arises later due to turbinate reduction. With aging, this condition can worsen. Robert's ENS symptoms left him struggling with a drastically diminished quality of life. In October 2020, after exhaustive efforts to find a diagnosis, Robert and his family traveled to the Mayo Clinic, where he was officially diagnosed with ENS. His brother noted that while this condition may not be life-threatening, it severely impacted Robert's quality of life. The mental toll was profound; despite his selflessness, he grappled with despair as he reflected on his situation, even comforting his brother during his own emotional struggle. Robert went missing on February 15, 2021, and was found deceased on May 24, 2021, at the age of 48. His tragic story serves as a stark reminder that ENS is a progressive condition that often worsens with aging, as the functionality of the mucosa further degenerates.
Luke Botsis, US (2021) PDF Blog Luke's Story (word) Video
Luke Botsis, US (2021) PDF Blog Luke's Story (word) Video
Luke Botsis was born on July 2, 1987, in Albany, New York. Though detailed information about his professional life remains scarce, it is known that Luke was unable to work following his surgeries due to debilitating symptoms. He was not only a son but also a brother, leaving behind family members who have been profoundly affected by his tragic story. In 2017, Luke underwent turbinate reduction surgery, which involved the reduction of his turbinates and the opening of his ethmoid sinuses using a microdebrider. Unfortunately, this surgery led to the onset of Empty Nose Syndrome (ENS), a condition that profoundly altered his quality of life. Luke expressed his suffering in a Facebook group for ENS sufferers, stating, “However, my guess is I have permanent nerve damage, especially considering my ethmoid cells were removed with a microdebrider.” Following the surgery, he experienced severe symptoms, including an overwhelming sensation of suffocation, extreme nasal pain, and significant discomfort between his eyes. Luke believed he developed secondary atrophic rhinitis as a direct result of his surgery, leading to a morning ritual of waking up with a completely dry nose and green crusting. In July 2019, in a bid to alleviate his suffering, Dr. Das performed a cartilage implant surgery to reduce the open space in Luke's nose after the turbinate reduction. While he reported a 50% improvement in nasal pain and a reduction in his sensation of suffocation shortly after the procedure, he still faced considerable discomfort. Luke described his condition: "Unfortunately, I still have pain, especially between my eyes and the deep interior of the upper half of my nose." Despite spending $10,000 out of pocket for the surgery, he remained unable to work, and his goal of returning to employment felt increasingly out of reach. In addition to the cartilage implant, Luke pursued other treatments, including PRP-Acell injections and experimental hyaluronic acid injections. The latter, which cost $900, unfortunately did not yield any relief. He also utilized various moisturizers and lubricants for his nose, such as Ayr gel and Honey Nose drops, to cope with his symptoms. However, the effectiveness of these treatments waned, and his symptoms remained unmanageable, contributing to his deteriorating mental health. The sensation of suffocation became unbearable for Luke, to the extent that he felt it was driving him insane. By December 9, 2021, after enduring years of suffering, he decided he could no longer live with the pain and chose to end his life. Luke was just 34 years old at the time of his death. Before his passing, Luke shared a profound statement on Facebook, reflecting his thoughts on life and death: “Death is nothing to be afraid of. Remember, you were dead billions of years before you woke up one day and were born and gained consciousness. Everything dies, even the magnificent sun up in our sky… will one day die.” Unfortunately, the identity of Luke's original surgeon remains unknown.
Rachel Jordan, UK (2021) PDF Blog Story (word) Video
Rachel Jordan, a 38-year-old woman from the UK, tragically took her own life in 2021 after enduring severe nasal and breathing issues. Her struggles, shared through heartfelt posts in a Facebook support group, reveal a life filled with desperation and pain. Rachel had a tumultuous journey that began years prior. She suffered from atrophic rhinitis, which caused her nose to become increasingly dry, sore, and prone to bleeding. Over a decade, she developed symptoms that included extensive crusting, leading her to pick at her nose. This habit left her nasal mucosa red and numb, resulting in a complete loss of sensation. In her own words, Rachel described feeling like her nose was too open, and her ability to sense airflow was irreparably damaged. In 2020, Rachel underwent a septorhinoplasty, a procedure intended to correct her breathing difficulties and enhance her nasal appearance. Despite her hopes, the surgery only worsened her condition, resulting in symptoms characteristic of Empty Nose Syndrome. She expressed regret and frustration, admitting, "It was stupid. I don't know why I thought that surgery would help, but I was desperate." Rachel faced numerous challenges post-surgery. Her inability to breathe normally left her in a constant state of anxiety, affecting her sleep and daily life. She often woke in the early hours, feeling suffocated and unable to control her breathing. In her attempts to find relief, she tried various treatments, including Sertraline (Zoloft) for anxiety, Mirtazapine for sleep, and several topical remedies for nasal dryness, such as NeilMed and coconut oil. Unfortunately, none provided significant relief, and she continued to suffer from debilitating symptoms, including lightheadedness, noisy breathing, and an overwhelming feeling of panic. Despite seeking medical advice, Rachel was not adequately informed about the risks of her surgery, leaving her feeling isolated and hopeless. The physical and psychological toll of her condition became unbearable, as she struggled to breathe normally and was unable to return to her former quality of life. Rachel was a mother, and her condition deepened her despair as she feared for her future and her ability to be present for her young daughter. The cumulative effects of her worsening symptoms and constant fight-or-flight response ultimately led to her tragic decision to end her life. The aftermath of Rachel's death left her family devastated, particularly her young daughter, who now faces life without her mother.
Marc Bidaux, France (2021) Blog Testimony (word) PDF Video
Marc Bidaux, a 42-year-old resident of Finistère, France, was born in 1979 and left behind a loving family, including a wife and two children. His struggle with nasal obstruction began about eight years before his surgeries, during which he tried various treatments, including the nasal spray Dérinox. Unfortunately, these treatments did little to alleviate his symptoms, primarily caused by allergies. Frustrated with the lack of relief, Marc sought help from several ENT specialists, ultimately leading to his first surgery in June 2015. This procedure, a bilateral partial turbinectomy, involved the removal of a few millimeters of the turbinates. During consultations, Marc expressed concerns about the risks associated with surgery, including the possibility of developing Empty Nose Syndrome. However, the ENT specialist reassured him that the minor intervention would provide relief. Despite experiencing some initial improvement, Marc faced ongoing issues. By January 2016, he underwent an additional partial turbinectomy on the left side, hoping to resolve his remaining nasal obstruction. Unfortunately, this surgery marks the beginning of a downward spiral in his health. In March 2019, Marc suddenly found his nose completely blocked for a month and a half, despite having no apparent reason for this change. Treatments such as corticosteroids and cortisone sprays provided temporary relief but also resulted in severe pain. He experienced a sensation of burning in his nasal passages and a feeling of being too open, with unfiltered, unwarmed air rushing into his lungs upon inhalation. From this point on, his quality of life deteriorated rapidly; he suffered from painful breathing, facial pain, intense fatigue, and severe dyspnea, which left him unable to sleep without medication. Marc's life transformed from manageable to unlivable as he struggled with anxiety and depression, wondering how he could fulfill his responsibilities as a father and employee. Many ENT specialists dismissed his concerns, stating, “I’m not going to invent a disease for you; there’s nothing wrong.” However, one ENT eventually diagnosed him with ENS, confirming a 90% resection of his inferior turbinates through a scan. The degeneration and progressive atrophy of his nasal mucosa were observed, but no corrective surgery was offered. In his search for answers, Marc consulted with other specialists, including a renowned professor in Italy (Fabio Piazza), who noted the inexperience of the original surgeon. Despite the hope of finding relief, Marc's symptoms persisted. He struggled daily, fighting to maintain his energy and joy for life, but ultimately succumbed to the overwhelming despair of his condition. Tragically, he took his own life on January 23, 2021. His death left a profound impact on his family and highlighted the urgent need for awareness about the risks associated with nasal surgeries, especially the potential consequences of Empty Nose Syndrome. Mark is survived by his wife and two children. Mark left a Testimony, see link above.Maria J Izquierdo, Spain (2022)
Pending ongoing investigation. Maria was born in 1988, and at some point along the way, she underwent turbinate reduction and likely a septoplasty. After these procedures, she developed Empty Nose Syndrome. Maria ended her life in 2022 at the age of 34.
Pending ongoing investigation. Maria was born in 1988, and at some point along the way, she underwent turbinate reduction and likely a septoplasty. After these procedures, she developed Empty Nose Syndrome. Maria ended her life in 2022 at the age of 34.
Charly Audes, France (2024) PDF Blog Testimony (word) Radio Video
Charly Audes was a passionate and active young man whose life took a tragic turn following a septoplasty and turbinate reduction. As a devoted father of two daughters, Charly worked as an order picker in a logistics company. His life was enriched by an early love for sports, particularly boxing. At the age of 17, after sustaining a minor injury to his nose during a boxing match, he began experiencing intermittent nasal blockage. This marked the beginning of Charly's struggles. In December 2022, he underwent a septoplasty with turbinate reduction performed by Dr. Zielinski. In July 2023, he had another corrective septoplasty conducted by Dr. Ayoun, followed by a PRP injection from the same doctor in October 2023. Unfortunately, these interventions did not alleviate his symptoms; instead, they led to severe pain, choking episodes, and debilitating issues like brain fog, anxiety, and a persistent feeling of suffocation. These challenges culminated in a “living hell,” where he felt disconnected from reality, significantly impacting his mental health and quality of life. Dr. Ayoun eventually confirmed his diagnosis of Empty Nose Syndrome (ENS), while Dr. Zielinski continued to deny it until the end. Charly was expressing despair over his inability to enjoy life or return to work. His mental state deteriorated as he grappled with the relentless symptoms of ENS. In a farewell letter, he expressed feelings of hopelessness: "I have never wanted to live more than since I had Empty Nose Syndrome, but imagine having to spend every second of your life in an altered state. It's not depression that makes us want to die; it's not being able to live normally and having the assurance that it will last our entire life." Tragically, Charly took his own life in 2024, leaving behind a wife, two young daughters, his mother, and three sisters. His family has since sought legal action, aiming to raise awareness about the devastating consequences of nasal surgeries and the inadequacies in patient care. In his heartfelt testimony, Charly implored for greater awareness and preventive measures regarding turbinate surgeries, emphasizing the urgent need to protect future patients from the hell he endured.54 year old Canadian man (17 May 2024) PDF
In 2009, a Canadian man (born in 1970) underwent nasal surgery to address a retracted columella and a drooping nasal tip. The procedure was performed by Dr. Ali Esmail, who claimed it was a limited cosmetic procedure. However, the patient’s turbinates were also altered, although this was not documented in the operative report. The surgeon repeatedly misled the patient during follow-up appointments, blaming a previous surgeon for any issues. Unfortunately, the man had not been informed of the risks associated with the procedure, particularly those concerning turbinate reduction. Almost immediately after the surgery, the patient began experiencing symptoms of Empty Nose Syndrome and extreme nasal dryness, which left him in constant physical distress. Despite visiting several ear, nose, and throat (ENT) specialists, he was dismissed repeatedly, with most doctors stating that his nose "looked fine" and suggesting simple remedies such as hydration and nasal sprays. Some doctors acknowledged mild dryness but denied the possibility of ENS, leaving the man feeling increasingly helpless. In search of relief, he traveled to British Columbia to see a specialist, but the proposed treatment of hyaluronic acid (HA) injections provided only temporary relief. Financial constraints made it impossible for him to continue these treatments or explore more advanced surgical options. His condition worsened, leaving him with unbearable nasal dryness that severely impacted his quality of life. By may 16 or 17, 2024, after 15 years of struggling with the unrelenting symptoms of ENS, the man could no longer cope. He felt that his condition was making his family's life difficult and, at the age of 54 he tragically took his own life. Before his death, he left behind a letter asking the ENT community to acknowledge and properly treat ENS. He expressed his deep love for his wife and children and his desire for his wife, then 53, to find happiness again without him as a burden. His death had a profound impact on his family, leaving behind a wife and two children, aged 24 and 26. Family don't want to release name.
Tyler Kuckelman, US (May 18, 2024) PDF
Tyler Kuckelman, a 37-year-old web developer from Texas, underwent rhinoplasty and turbinate reduction surgery in October 2023, aiming to improve airflow and aesthetics. The surgery was performed by a well-known Dallas doctor, possibly Dr. Rod Rohrich. Tyler was not informed of the potential long-term complications associated with the surgery, including the risk of developing Empty Nose Syndrome (ENS). At the beginning of May 2024, roughly six months after the surgery, Tyler began experiencing symptoms of ENS, which is characterized by a sensation of nasal obstruction despite an open airway. This condition severely impacted his physical and mental health, leading to profound psychological distress. Tyler's quality of life, which had been manageable before the operation, became unlivable in the months following the procedure. On May 18, 2024, Tyler tragically took his own life. His family, including his sister Crystal Kulle, was devastated. Crystal has since spoken out about the dangers of ENS and the lack of adequate information regarding the potential risks of rhinoplasty and turbinate surgeries. Tyler's case highlights the need for better preoperative education and awareness about the possible complications of these procedures.Océane Flavigny, France (2024) PDF Blog Story (word) Video Facebook TikTok
Océane Flavigny (1994-2024) was a 30-year-old woman from Cambrai, France. She underwent two cosmetic surgeries: the first, in 2021, was performed by Dr. Marion Beuzeboc, which resulted in complications due to nasal turbinate reduction, although Beuzeboc denied performing this procedure. X-rays later revealed a significant hole in her left nasal turbinate, indicating a serious issue. In April 2023, Océane had a revision surgery conducted by Dr. Christophe Gaillard to address the functional problems caused by the first operation. However, she was not adequately informed about the potential consequences of her surgeries, including nerve damage and scar tissue that could hinder her breathing. Following the first surgery, she experienced severe symptoms, including nasal pain, dryness, crusting, unpleasant odors, breathing discomfort, insomnia, and nasal congestion, leading to a significantly diminished quality of life. Océane sought support in Empty Nose Syndrome (ENS) groups and expressed interest in stem cell injections, but financial constraints hindered her attempts at treatment. Despite her struggles, she maintained a positive online presence until just weeks before her death when she posted a farewell message indicating her despair. Tragically, on May 20, 2024, 12 months and 26 days after her second surgery, Océane took her life as a consequence of the complications and mental anguish resulting from her surgery. Leaving her family, her mother and older brother, Julien Flavigny, and her community devastated by the loss.Sam Treffry, Australia (2024) Blog PDF
Sam Treffry, aged 34, tragically took his own life on October 1, 2024, after battling the debilitating effects of Empty Nose Syndrome (ENS). A dedicated student of town planning, he had been working in both a hospital and a hotel. Despite seeming content, Sam struggled silently with the debilitating symptoms of ENS, a condition that arose from routine nasal surgeries performed during his teenage years to address sinus problems and snoring. In his suicide note, Sam disclosed his recent diagnosis of ENS, which left him with severe breathing difficulties, insomnia, and depression. He had withdrawn from university and quit his jobs, unable to cope with the relentless fatigue and mental anguish. His condition drastically affected his sleep and mental health, leading him to a point of despair. Sam's surgeries were performed by Dr. Mooney, a physician later jailed for malpractice. The family was unaware of his struggles with ENS until it was too late, and his sudden passing has left them devastated. His brother Will shared cherished memories of their time together, including a boating trip that now serves as a bittersweet reminder of Sam's absence. Will's heartfelt tribute emphasizes the urgent need for awareness about ENS and the importance of supporting those who suffer in silence. Sam’s story serves as a poignant reminder of the hidden battles many face and highlights the necessity for early diagnosis and compassionate support for those living with this devastating condition.Bente Van de Veerdonk, Netherlands (2024) Internal Article Video Word Facebook
Bente Van de Veerdonk, born on December 28, 1997 in Netherlands, was a bright and driven young woman who seemed destined for a successful and fulfilling life. She was pursuing studies in marketing and communication while building a career in childcare. However, her life took a devastating turn after a nasal surgery in early 2024, performed to correct a deviated septum. A surgery that also included turbinate reduction performed via coblation. This procedure led to the onset of Empty Nose Syndrome (ENS), a debilitating condition that ultimately became too much for her to bear. In November 2024, unable to endure the unrelenting suffering any longer, Bente made the heartbreaking decision to end her own life. The surgery, which was intended to improve her nasal airflow. Instead, it triggered a cascade of complications. ENS caused her to lose the normal sensation of airflow in her nose, leaving her with a constant feeling of excessive openness. This was accompanied by severe nasal dryness, crusting, and an intense burning pain that never subsided. Post-surgical treatments, including corticosteroid nasal sprays, seemed to worsen her symptoms. Bente’s struggles extended far beyond physical pain. She faced profound challenges in her daily life, including an inability to sleep. Days and nights were plagued by hyperventilation. On multiple occasions, she went up to five days without sleep. Her constant awareness of her breathing consumed her thoughts, making it nearly impossible to focus on everyday tasks. Even simple distractions, like watching television, became intolerable. The condition also caused systemic effects: dry eyes, ear pain, a persistent lump in her throat, and burning sensations in her chest and limbs. Bente tried numerous remedies, from nasal ointments to warm beverages, and sought help from specialists and online support groups. She vulnerably shared her experiences, expressing the profound impact ENS had on her mental and emotional well-being. Despite her determination to find relief, Bente’s condition only worsened. Her hope of consulting an ENS specialist in Rotterdam and exploring other treatments was overshadowed by the overwhelming pain and exhaustion. By the end of 2024, her quality of life had deteriorated to such an extent that she felt there was no way forward. In her final months, the once-ambitious and vibrant woman was consumed by the unrelenting physical pain and emotional exhaustion caused by her condition. Bente left this world far too early, just 1.5 months before her 27th birthday in November 2024. She became the sixth person that year to end their suffering due to Empty Nose Syndrome. How much longer will ear, nose, and throat surgeons be allowed to perform these procedures, before action is taken to prevent such tragedies?
Premature and Sudden Deaths Related to ENS
Michael Jackson, US 2009 Video (External) PDF
In Michael Jackson's wrongful death suit, one of his doctors testified that Jackson's insomnia could have been a result of Empty Nose Syndrome. According to a report from ABC7, "Jurors heard from varshan that Jackson Jackson suffered from insomnia years earlier. The doctor's theory was that it was linked to the cosmetic surgery, a key part of Jackson's nose missing." Dr. Alimorad Farshchian stated, "It's possible that you produce what they call Empty Nose Syndrome, producing in some".... Sleep problems are extremely common among individuals with Empty Nose Syndrome, this is also noted by science and most people with this condition are forced to take sleeping pills just to get some rest - Michael Jackson was no exception. He died on June 25, 2009, from an overdose of propofol, a powerful anesthetic used to help him sleep. His death is considered a result of involuntary manslaughter, not suicide. His personal physician, Dr. Conrad Murray, had administered propofol and other medications to Jackson over an extended period to address his chronic sleep issues. At the time of Jackson's death, he had been overdosed with propofol, which led to cardiac arrest. Dr. Murray was later convicted of involuntary manslaughter and served time in prison for his role in Jackson's death.Loan Pham US 2023 PDF
Loan Pham was a 53-year-old woman from the United States who worked at the Tazewell County Health Department and the University of Illinois College of Medicine. She had been planning to pursue an MBA at the University of Illinois. Loan had a medical history of chronic maxillary and ethmoidal sinusitis, along with septal deviation causing nasal obstruction. After suffering from a decade of perennial allergies and unsuccessful treatments, she underwent surgery in 2003, performed by Dr. Michael J. Gootee. The procedure involved multiple interventions, including bilateral endoscopic ethmoidectomies and a septoplasty, which led to severe complications, including Empty Nose Syndrome (ENS). Post-surgery, Loan experienced immediate and significant symptoms such as facial and nasal pain, breathing dysfunction, insomnia, and anxiety. Despite seeking various treatments, including implants and nerve blocks, her condition only worsened over time. She moved to a warmer climate in an attempt to alleviate her symptoms, but nothing brought lasting relief. Her health and quality of life, once manageable, deteriorated drastically after the surgery. Loan Pham eventually passed away in 2023 due to long-term systemic body issues associated with Empty Nose Syndrome.Died unexpectedly after rhinitis surgery.
Another young mother lost her life under similar circumstances.
Need for Further Research
Man from, Portugal 2016 (Under investigation)
Eugene Kern mention 4 ENS related suicides in his Book:
Empty Nose Syndrome: Evidence Based Proposals for Inferior Turbinate Management. Two of these individuals are mentioned above: Female patient to Dr. Eugene Kern, US 1988. Male patient to Dr. Eugene Kern, US 1994.
Jason Sheftell, US 2013 Article External PDF
Suspected ENS, as per Facebook posting
Jiangxi young man, (一个江西空小伙先) China 2016. PDF
Not added above, as no name given. From Sun Sulins list
Man (name missing), China 2007
In 2002, a patient underwent nasal septum surgery but later claimed the results were "unsatisfactory." In 2007, this patient stabbed Dr. Dai Wenhong, an attending physician at the Otolaryngology Department of Xinxiang Second People's Hospital in Henan Province, a total of 11 times. The stab wounds were inflicted across the chest, back, abdomen, and groin. The most fatal wound penetrated the heart. Despite rescue efforts, Dr. Wenhong succumbed to his injuries.Wang Baoming (王宝洺), China 2011 PDF
Laryngectomy: This is NOT an Empty Nose Syndrome case. Wang Baoming was once a well-respected man who taught calligraphy and led a fulfilling life. He lived in Beijing, where he ran a successful calligraphy school with his wife, Ms. Gong. Together, they managed a thriving business, earning a substantial income. Wang was known for his cheerful personality, and his life revolved around his art and his family. But all of that changed in September 2006, when he was diagnosed with early-stage laryngeal cancer. Hoping for a successful treatment, Wang sought the expertise of Dr. Xu Wen, a renowned throat specialist at Beijing's Tongren Hospital. Dr. Xu performed a CO2 laser throat microsurgery, which is typically a minimally invasive procedure used to treat early-stage cancers. However, the results of the surgery left Wang deeply dissatisfied. In his view, the surgery had not only failed to remove the cancer completely but had, in fact, worsened his condition. Wang believed that Dr. Xu had mishandled the tumor, leaving remnants of cancer cells that allowed the disease to spread. This led to two more operations at the Cancer Hospital of the Chinese Academy of Medical Sciences, where surgeons worked to salvage what they could. While Wang survived, the surgeries left him severely disfigured and permanently disabled. After the operations, Wang's physical appearance changed dramatically. He had a permanent hole in his neck, spoke through esophageal air, and had to cover his scars with a beard that extended to his Adam's apple. Skin from his rib had been grafted onto his chin, causing him to walk with a stooped posture. His altered appearance forced him to hide behind dark glasses and a hat whenever he ventured outside, deeply affecting his self-esteem. His once-vibrant personality faded as he became reclusive and depressed. His wife no longer let him look in the mirror, as he would lash out whenever he saw his reflection, consumed by anger and grief over his disfigurement. Wang’s health issues left him unable to work, causing a sharp decline in the family’s income. From nearly one million yuan annually, they now had to survive on barely 1,000 yuan a month. Wang's mental health deteriorated further, and his relationship with his wife became strained, with frequent outbursts of frustration and violence. His decline into depression and helplessness worsened over the years as he struggled to find justice for what he saw as medical malpractice. Wang and his family filed a lawsuit against Tongren Hospital and the Cancer Hospital in 2008, seeking 17 million yuan in damages. However, the legal process dragged on for years without resolution. The case became bogged down in disputes over the authenticity of the hospital's medical records, with Wang accusing the hospital of forging documents. These procedural delays left Wang feeling increasingly hopeless. His attempts to seek justice through other channels, such as writing letters to health authorities, also yielded no results. Over time, Wang felt abandoned by the system, his sense of betrayal growing deeper. On September 15, 2011, after three long years of legal battles, Wang reached a breaking point. Earlier that day, he had called his lawyer to urge the court to expedite his case, but no progress was made. Later that afternoon, Wang arrived at Beijing Tongren Hospital armed with a knife. He found Dr. Xu Wen and, in a violent rage, attacked her, stabbing her multiple times. Dr. Xu suffered severe injuries, including fractures and nerve damage. She was rushed into emergency surgery, and although her life was saved, the brutality of the attack shocked the medical community and the public. Wang was arrested shortly after the attack. Wang’s wife, Ms. Gong, expressed sorrow over the incident, acknowledging the wrongness of the attack but explaining that years of physical suffering, financial ruin, and being ignored by the justice system had driven Wang to desperation.
Lu Foke (吕福克), China 2012 PDF Baidu "Chinese wikipedia" News (video)Lü Fuke, born in 1961, was a worker at the Shougang Power Plant in Beijing, residing in the Fengtai District. He led a life shaped by chronic nasal discomfort, having long suffered from rhinitis and a deviated septum. These conditions drove him to seek medical treatment multiple times, as he was eager to find relief from his ongoing symptoms. Lü first sought care at Peking University People's Hospital, where he was treated by Dr. Xing Zhimin on November 15, 2011. Despite the treatment, Lü remained unsatisfied with the outcomes. He continued his search for a solution, later visiting the Aerospace General Hospital in December 2011, only to be similarly dissatisfied with the diagnosis. Lü’s frustration grew into resentment, and in a fit of anger, he even physically attacked a doctor at the hospital. Desperate for relief, Lü underwent a nasal septum correction procedure at a hospital in Tianjin. Unfortunately, the surgery failed to alleviate his discomfort. Convinced that his nose had been further damaged, Lü's mental state began to deteriorate (most likely due ENS). He couldn't sleep at nigh and he had Tinnitus. He felt deeply wronged by the medical system, blaming doctors for his worsening condition. His behavior became increasingly erratic and alarming—neighbors reported him as mentally unstable, citing violent incidents such as an altercation in which he threatened a couple with an axe. On April 13, 2012, Lü’s frustrations culminated in a shocking act of violence. At 10:30 a.m., he entered Peking University People's Hospital and attacked Dr. Xing Zhimin, slashing her neck, leaving her critically injured. Later that evening, at 7:30 p.m., Lü entered the emergency department of Aerospace General Hospital and stabbed another doctor, Dr. Zhao Lizhong, in the neck. Dr. Zhao, who had no prior involvement with Lü’s treatment, managed to pull the knife from his neck and even chased Lü before returning to the emergency room to oversee his own treatment. Both doctors survived the attacks, but the events sent shockwaves through the medical community. Following the attacks, Lü went on the run for 11 days before being apprehended by police in Hebei Province. His case received widespread attention, with media outlets reporting on the violent escalation of tensions between Lü and the medical professionals involved. During his trial, it was revealed that Lü suffered from schizophrenia, a mental disorder that contributed to his erratic behavior and reduced his criminal responsibility. As a result, Lü was sentenced to 13 years in prison for attempted murder, with the court recognizing his diminished mental state. The violence Lü perpetrated deeply affected the doctors involved, particularly Dr. Xing, who returned to her clinic but was forever changed by the trauma. Security measures in hospitals across China were heightened in response, with doctors purchasing batons for self-defense and altering the layout of examination rooms to better protect themselves.
Lian Enqing (連恩青), China 2013
Ou Xuejun (区学军), China 2012 PDF Tiktok Video internal
Ou Xuejun, a patient from Shenzhen, is at the center of a deeply troubling incident that highlights the escalating violence against healthcare professionals in China. This tragic event unfolded on the morning of September 3, 2023, when Ou, frustrated by the unsatisfactory results of his medical treatment, entered the ENT department of Shenzhen Pengcheng Hospital wielding four knives. In a shocking display of violence, he slashed four medical staff and security guards, leaving two individuals seriously injured. Ou, who had undergone "double pre-ethmoid nerve block" treatment earlier in July, was reportedly seeking help for his rhinitis. However, he felt that the treatment made him worse, leading to a desperate and violent retaliation against those he held responsible for his treatment. Among the injured was Dr. Xiao, a male physician in his 30s, who suffered severe head injuries, and a female nurse in her 20s, who was slashed on the hands. Fortunately, the authorities later confirmed that none of the victims were in danger of death, as they received prompt surgical care at Shenzhen People's Hospital and Shenzhen Second People's Hospital. Such incidents of violence against healthcare workers are increasingly becoming a concern in China, The incident involving Ou Xuejun is part of a troubling trend, with several violent attacks against doctors reported in recent years. For instance, there have been at least seven serious cases of medical personnel being harmed or killed in the line of duty over the past two years, reflecting the growing frustrations and tensions in doctor-patient relationships.
To note: Nerve Blocks - involves injecting anesthetic agents into specific nerves (in this case the pre-ethmoid nerves) located in the nasal area. This helps numb the targeted area, potentially reducing pain and discomfort... However, the sensation of nasal airflow is tied to nerve endings in the nasal mucosa. If these nerves are blocked, the patient will feel like there's little no nasal airflow, even if the nasal passages are unobstructed. This causes discomfort, sleep problems, breathing problems and anxiety,
Lu Foke (吕福克), China 2012 PDF Baidu "Chinese wikipedia" News (video)
Lian Enqing (連恩青), China 2013
On October 25, 2013, a tragic incident unfolded at Wenling First People's Hospital in Zhejiang Province, China, when former patient Lian Enqing attacked three doctors, resulting in one death and two injuries. In March 2012, Lian had undergone nasal septum correction surgery combined with bilateral inferior turbinate submucosal resection to address nasal blockage. However, he developed Empty Nose Syndrome, an incurable and severely life-altering condition, following the surgery. Over the months that followed, Lian returned to the hospital around 40 times, insisting that the surgery had worsened his condition. However, doctors repeatedly told him that there was nothing wrong with his nose and that his symptoms were unrelated to the operation. Like many other ENS sufferers, Lian had not been informed of the potential risks of the procedure. His health continued to decline, affecting his sleep and mental well-being, leading to irritability and a deepening sense of distress. Despite multiple consultations where doctors maintained that the surgery had been successful, Lian grew increasingly convinced that they had made a mistake. His mental health deteriorated further, and in August 2013, he was diagnosed with persistent delusional disorder after being admitted to the Shanghai Mental Health Center. Following two months of treatment, his condition showed little improvement. After his discharge in mid-October, Lian’s mental state rapidly worsened. On October 25, armed with a hammer and knife, he attacked the doctors at Wenling First People's Hospital, specifically targeting Dr. Wang Yunjie, the surgeon who had performed his operation. Lian fatally stabbed Dr. Wang seven times, also injuring two other doctors in the process. Before the attack, Lian had left a note on his wall, naming the doctors he held responsible for his suffering. This tragic case highlights the profound impact of unresolved medical conflicts. Lian was sentenced to death for killing Dr. Wang, whom he blamed for his Empty Nose Syndrome. After the sentencing, Lian admitted that "he wanted to die" due to the severe suffering ENS had caused him following the surgery... There are 14 news videos featuring Lian’s 2014-2015 interviews, search “連恩青” in the video section of: https://search.cctv.com/index.php; Chinese to English video transcript creator -https://app.simplified.com/login
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