Turbinate Reduction Complications: Christopher Supalla’s Struggle with Empty Nose Syndrome (1988-2021)

Empty Nose Syndrome in the media · Christopher “Chris” Supalla

Chris Supalla: Severe Breathing Distress After Septoplasty and Turbinate Microablation

Chris Supalla’s family described a rapid and devastating decline after nasal surgery, with profound breathing discomfort, loss of normal airflow sensation and severe sleep disruption. His case later became part of a wider public discussion about Empty Nose Syndrome, informed consent and recognition of postoperative complications.

Source context: Statements about Christopher Supalla’s diagnosis, surgery, causation, medical care and Empty Nose Syndrome are presented as reported by his family, quoted clinicians, the newspaper article and preserved source material. Where OHSU disputed or could not substantiate ENS, that position is also retained below.
NameChristopher “Chris” Supalla
HomePortland, Oregon
ProfessionAccounting
SurgerySeptoplasty + microablation
Reported turbinate removalAbout 1 mm
Age reported32

Video About Christopher Supalla

A “Plastic Bag” Sensation After Nasal Surgery

Chris Supalla had been tossing and turning with a stuffy nose when several doctors advised him that a relatively simple nasal operation could improve his breathing and sleep. According to his mother, Mary Supalla, the outcome was dramatically different from what the family expected.

Mary told The Post that Chris was “gasping for breath” and said it felt as though a plastic bag were over his head.

Chris was 32. Three months after surgery, he was lost following a final crisis.

In his final written message, Chris apologized to his family, said the suffering had become too great and wrote that his nose felt so empty that he could no longer feel anything at all. He ended by telling them that he loved them.

The source material also preserves a separate practical note Chris left for his family so that first responders, rather than relatives, would recover him. The wording reflects how strongly he wanted to shield his family from further trauma.

Dr. Eugene Kern and Growing Recognition of Empty Nose Syndrome

Nearly 30 years after Empty Nose Syndrome was first identified, the article reported that the condition was gaining greater recognition. It noted the publication of a medical textbook on ENS by Dr. Eugene Kern, professor of otorhinolaryngology at the University at Buffalo.

In the early 1990s, while working at the Mayo Clinic, Kern encountered two postoperative patients treated elsewhere who told him that they experienced a sensation of suffocation with every breath. Both were later lost after severe crises.

Other patients have compared the experience to drowning, smothering or being waterboarded. Kern described these patients as “nasal cripples” and emphasized that many can barely sleep because they repeatedly wake with a sensation that the body is not breathing, even though respiration continues. Mouth breathing may not solve the sensory problem.

Kern said he wanted his book to shine a light on an area in which people had suffered greatly, adding that he had personally witnessed the suffering.

The article describes ENS as a potential complication after nasal surgery affecting the turbinates — cylindrical structures that help regulate incoming air. Turbinate reduction may be performed together with septoplasty for a deviated septum or as part of other nasal surgery.

David Troutman and the ENS Support Community

David Troutman of Indiana told the newspaper that he had no idea what a turbinate was when he underwent surgery for sleep apnea six years earlier and had simply trusted his doctor.

After surgery, Troutman described himself as exhausted, unfocused and endlessly pacing. His condition became so concerning that his boss drove him to the emergency department.

“I was a shell of myself,” he said. “My personality was just gone.”

Troutman, then 54, became a moderator of an Empty Nose Syndrome Facebook group and described the group as being filled with difficult stories. He expected his own struggle to be lifelong and said there had been no relief or reprieve.

The article reported that the Facebook group had around 3,700 members and had recorded 14 tragic losses over the preceding six years. Those numbers are community-compiled reports rather than population-level incidence data.

The condition remains difficult to predict. Incidence is unknown, and doctors do not yet know why some patients tolerate turbinate tissue removal while others develop severe symptoms. A small number of physicians in the United States attempt treatments that may include intensive moisturization or procedures designed to alter nasal airflow.

Kern told The Post that turbinate removal can produce severe post-traumatic neurogenic-type pain. He also noted that some people may have enough compensatory functional capacity to remain symptom-free for two, five or even ten years, and that there is no single clinical test that fully determines nasal function.

Chris’s Septoplasty, Microablation and Questions About ENS Risk

Chris worked in accounting and, according to his mother, consulted three doctors before undergoing surgery.

He underwent septoplasty and microablation. His doctors reportedly said that only about one millimeter of turbinate tissue had been removed.

Mary Supalla said Chris specifically asked about Empty Nose Syndrome because he was worried about it. The doctors were familiar with ENS but reassured him that they had not seen it in their own patients.

The Supalla Family’s Requests to Oregon Health & Science University

After Chris’s passing, his parents asked Oregon Health & Science University to warn future patients about the possible risk of Empty Nose Syndrome.

The source repeats this point twice, emphasizing how strongly the family pursued the issue: after Chris’s passing, Mary and Brian Supalla requested that OHSU warn patients about ENS.

Mary Supalla said that the potential complications were so severe and life-altering that patients deserved to know about them. She described Chris as unable to breathe, unable to sleep and unable to function normally.

OHSU’s patient advocate initially wrote that the institution would educate doctors, medical students and staff. The advocate also wrote that although the institution could not clinically substantiate an ENS diagnosis, it believed the experience Chris had been describing.

Several months later, after the family again requested that patients be warned, the patient advocate wrote that OHSU had not found that Chris had ENS and indicated that there would be no further communication on the matter.

In a statement to The Post, authorized by the Supalla family, OHSU extended condolences and said that Chris had specifically asked about Empty Nose Syndrome before surgery. According to OHSU, his clinical team discussed ENS with him as part of the informed-consent process.

OHSU also stated that after surgery its clinicians could not clinically substantiate an ENS diagnosis. The institution said its clinicians discuss ENS when relevant to the procedure or to a patient’s questions and that, at the family’s request, information shared by the Supallas had been incorporated into teaching and academic processes for continual improvement.

Chris Supalla’s Messages and Additional Archived Material

Chris documented his rapid decline in a series of text messages with his mother, Mary. The preserved material records his struggle to understand and adapt to severe breathing difficulties after nasal surgery.

Supporting Documentation

Additional collected material concerning Christopher Supalla, the family’s account and Empty Nose Syndrome is available in the document below.

Empty Nose Syndrome’s Impact on Robert: A Police Officer’s Brave Yet Tragic Story

Patient case documentation · Empty Nose Syndrome

Robert Byrnes: Empty Nose Syndrome diagnosed 24 years after septoplasty

A documented account based on Robert Byrnes’ family eulogy, obituary material and records describing a Mayo Clinic Empty Nose Syndrome diagnosis after years of previously successful breathing following nasal surgery.

Robert Gerard Byrnes was born on December 13, 1972, in the Bronx, New York, and grew up in Yonkers. According to the funeral speech given by his brother, Robert became seriously ill in April 2020 and underwent extensive medical evaluation before an ENT specialist at Mayo Clinic diagnosed him with Empty Nose Syndrome (ENS) on October 28, 2020.

Source and evidence note: Information about Robert’s nasal surgery is limited. The family eulogy confirms an operation for a deviated septum approximately 24 years before the ENS diagnosis. The available material does not independently establish every surgical step, so this page does not present turbinate reduction as confirmed unless specifically supported by the source.
NameRobert Gerard Byrnes
BornDecember 13, 1972
HomeYonkers, New York
Prior surgerySeptal surgery for deviated septum
ENS diagnosisOctober 28, 2020
Age at death48 years

Illness and Empty Nose Syndrome diagnosis at Mayo Clinic

Robert Byrnes – Empty Nose Syndrome case from Yonkers, New York
Robert Gerard Byrnes. Image preserved with the original case material.

Robert’s brother stated that Robert became very sick in April 2020. He saw multiple doctors in New York, but the cause of his increasingly severe medical problems remained unclear.

The family then travelled to Mayo Clinic in Rochester, Minnesota, in October 2020. According to the eulogy, Robert underwent extensive testing, including blood tests, MRI scans, CT imaging and other examinations.

On October 28, 2020, an ENT specialist diagnosed Robert with Empty Nose Syndrome.

Robert’s brother describes the diagnosis

“Rob became very sick in April of 2020. He went to multiple doctors who struggled to provide answers to medical anomalies which became increasingly worse day by day.”

Robert’s brother described arranging the trip to Mayo Clinic because he believed a specialist team might finally identify what was causing the unexplained problems. He said that after several days of testing, an ENT specialist diagnosed Robert with Empty Nose Syndrome.

“On October 28th, we met with an ENT specialist who diagnosed Rob with a condition called Empty Nose Syndrome.”

In the same eulogy, his brother recalled that Robert had undergone nasal surgery about 24 years earlier because of breathing problems related to a deviated septum. He described that earlier operation as initially very successful.

“The operation was a blessing at the time, as he was struggling to breathe, and this had an immediate and positive impact.”

His brother then described the family’s understanding that the earlier surgery was relevant to Robert’s later ENS diagnosis. He also recalled the emotional impact of learning that there was no straightforward cure and how, even while seriously ill himself, Robert tried to comfort his family.

Earlier nasal surgery and the later ENS diagnosis

The available family account confirms surgery for a deviated septum approximately 24 years before the Mayo Clinic diagnosis. The original page described turbinate reduction as likely, but the supplied source does not independently confirm that detail.

This distinction matters because a professional case page should separate what is known from what is suspected. What is directly supported here is that Robert had prior nasal surgery, initially experienced improved breathing, later became seriously ill, and was subsequently diagnosed with Empty Nose Syndrome by an ENT specialist at Mayo Clinic.

Robert Byrnes: family, education and police career

Obituary material describes Robert as a lifelong member of the Yonkers community. He attended St. Paul the Apostle Grammar School and Archbishop Stepinac High School, later earning an undergraduate degree in Criminal Justice from John Jay College and a Master’s Degree in Physical Education from Queens College.

2000 Began his law-enforcement career as an MTA Police officer.
2001 Joined the Rye Brook Police Department.
2007 Became a Yonkers Police Officer.
2012 onward Served as a Sergeant in the Yonkers Police Department.

Robert was described as proud of both his American and Irish heritage. He enjoyed travelling to Ireland, especially Counties Mayo and Monaghan, and his interests included jogging, boxing, painting, coffee, pizza, spending time with friends and helping people in his community.

“I love my family, my friends, my neighborhood, Yonkers, the Yonkers Police Department, the USA, Ireland and nature and all its beauty.”

Missing-person advisory and memorial material

The image below is preserved from the original page as part of the record surrounding Robert’s disappearance and the tributes shared by colleagues and members of his community. Click the image to open the full-size original.

Robert Byrnes missing-person advisory and memorial from Yonkers, New York
Missing-person and memorial material preserved in the Robert Byrnes case archive.

Supporting documents about Robert Byrnes

The full supporting document for Robert Byrnes is available through OneDrive. Open it in a new tab to view the complete source material.

Opens the OneDrive document in a new tab.

The Impact of Turbinate Reduction and Turbinectomy: Priscilla Roberts' Story

Empty Nose Syndrome testimony · Priscilla Robert

Priscilla Robert: Empty Nose Syndrome After Laser Turbinate Surgery, Turbinectomy and Septoplasty

This page preserves the full supplied account of Priscilla Robert’s experience with sinus problems, turbinate surgery, septoplasty, atrophic rhinitis, hyperventilation, severe insomnia and progressive loss of daily function.

More than three decades after Dr. Eugene Kern first identified Empty Nose Syndrome, the supplied source argues that patients continue to develop severe post-surgical problems after procedures including septoplasty, sinus surgery, turbinate reduction, rhinoplasty and spreader graft surgery.

Source context: The medical explanations, criticisms of the medtech industry and ENT profession, statements about nasal resistance, hyperventilation, hypoventilation, gas exchange and the relationship between surgery and later decline are preserved from the supplied source and should be read as the source’s claims and interpretation.
NamePriscilla Robert
Initial problemsSinus infections, eye pain, asthma
First turbinate procedureLaser treatment · 2009
Second operationInferior turbinate removal + septoplasty
Later diagnosis reportedAtrophic rhinitis
Passed awayAugust 6, 2015

Dr. Eugene Kern and the early identification of Empty Nose Syndrome

The supplied source begins by noting that more than three decades have passed since Dr. Eugene Kern first identified Empty Nose Syndrome.

It argues that despite this history, the number of people developing ENS after septoplasty, sinus surgery, turbinate reduction, rhinoplasty and spreader graft surgery continues to rise.

The accompanying video begins with comments from Eugene Kern about the condition before moving into a broader discussion of turbinate surgery and then Priscilla Robert’s testimony.

The rise of turbinate reduction technologies

According to the source, improvements in endoscopic camera technology since the 1980s helped drive the development of new instruments for turbinate reduction.

The text specifically names Coblation, Radiofrequency and Laser Ablation and argues that medical-device manufacturers increasingly produced tools capable of shrinking or destroying turbinate tissue.

The source strongly criticizes this development, arguing that the focus on reducing turbinate size did not adequately account for the possible destruction of nerves, receptors, blood vessels, cilia and goblet cells.

Airflow sensation, nasal dryness and resistance

The source argues that when enough airflow receptors are damaged, a person may lose the normal ability to sense airflow through the nose. It associates this sensory loss with a persistent fight-or-flight response.

It also describes severe nasal dryness and states that, over time, the nasal mucosa may degenerate into atrophic rhinitis.

Another argument in the source concerns nasal resistance. It states that an overly open nose may provide too little resistance for normal respiratory mechanics, allowing air to move in and out too quickly and contributing to hyperventilation and impaired gas exchange.

The text additionally refers to a case in which an excessively open nasal airway was associated with nightly hypoventilation and carbon-dioxide retention.

Loss of airflow sensationThe source links damage to nasal sensory receptors with an inability to perceive normal airflow.
Severe nasal drynessDamage to mucosal structures is described as contributing to persistent dryness.
Atrophic rhinitisThe source describes progressive mucosal degeneration in severe cases.
Altered breathing patternHyperventilation and, in one reported case, nightly hypoventilation are discussed.

The source further argues that nasal surgery has become increasingly routine as technology has advanced. It criticizes both the medical-device industry and parts of the ENT profession for not responding adequately to reports of serious postoperative problems.

It also alleges that complications may be attributed to poor healing or psychological causes and argues that some surgeons fail to discuss the essential role of the turbinates because doing so might discourage surgery.

Finally, the source states that severe ENS suffering has increasingly been associated with tragic losses and argues that these outcomes should have prompted a wider reassessment of aggressive nasal surgery.

Video: Eugene Kern and Priscilla Robert’s ENS testimony

Priscilla Robert’s story: repeated sinus infections in 2009

Priscilla’s testimony begins in 2009. She wrote that she suffered from sinus infections throughout the year.

While on sick leave, her doctor referred her to specialists, including an allergist and an ophthalmologist because she was also experiencing severe eye pain.

During this period, she learned that she also had asthma.

Her general practitioner eventually referred her to an ENT specialist, who diagnosed swollen turbinates and initially recommended laser treatment.

Laser treatment followed by inferior turbinate removal and septoplasty

In March, Priscilla underwent laser treatment intended to burn and shrink the turbinates.

She reported that the procedure did not improve her breathing.

Four weeks later she returned to the ENT specialist because she remained dissatisfied with her condition. According to her testimony, the next recommendation was removal of the lower turbinates together with septoplasty to correct the nasal septum.

The operation took place in April and was followed by nasal packing.

The day after surgery, after the packing was removed, Priscilla experienced a minor hemorrhage from her left nostril.

Although a nurse reassured her that she should now be able to breathe better, Priscilla continued to experience obstruction.

Her nasal pain intensified, her headaches became worse, and anxiety attacks became frequent. She also described being unable to remain standing because of the severity of the discomfort.

Emergency care, second opinions and a sleep study

Priscilla’s condition worsened until she required emergency care.

According to her testimony, the ENT specialist on call refused to acknowledge a connection between her current problems and the recent nasal operations.

After discharge, she sought a second opinion but said she was turned away because the physician did not want to become involved in another colleague’s surgical work.

In desperation, she traveled to Paris for a third opinion.

She then underwent a sleep study which, according to her account, showed poor sleep quality and snoring. Atrophic rhinitis was also identified.

“Since 2011, my life has been a nightmare”

From 2011 onward, Priscilla described an extreme deterioration in everyday life.

She wrote that she barely ate and could no longer sleep. She had lost her sense of smell, and despite the surgeries, her nose felt even more blocked than it had before.

Physical exertion became almost impossible.

She described living in constant hyperventilation with a perpetually dry nose. Cold air caused burning, and even speaking became extremely painful.

She experienced intense pressure extending from the nose toward the forehead, which she compared to having her head crushed.

Lying down became torture because she felt as though she were suffocating.

She described herself as utterly exhausted, isolated and deeply depressed, emphasizing that this was not how a person of her age should have to live.

Her testimony describes a life reduced by constant breathing discomfort, severe insomnia, pain, hyperventilation, dryness, isolation and exhaustion.

Priscilla’s warning about informed consent and turbinate surgery

Priscilla wrote that her condition continued to deteriorate after the operations and that, had she known the risks in advance, she would never have consented.

She found some emotional support through an association for affected patients but questioned why Empty Nose Syndrome remained poorly recognized in many countries.

She shared her story because she hoped other people could avoid the suffering she experienced.

In her own account, the laser treatment and later turbinectomy had destroyed the life she had known.

Before surgery, she had been active and engaged. Afterward, she described herself as confined and forced to spend much of her time in a semi-reclined position because of her symptoms.

She also wrote that only one ENT specialist had been willing to tell her directly that the turbinates do not regenerate once removed.

Priscilla Robert passed away on August 6, 2015. The supplied source presents her testimony as one of many severe ENS cases in which postoperative suffering became overwhelming.

Priscilla Robert’s testimony and supporting documentation

Empty Nose Syndrome: The Heartfelt Struggle of Mélisa Champion

Empty Nose Syndrome case · Canada

Mélisa Champion (1982–2015): Empty Nose Syndrome After Septorhinoplasty and Inferior Turbinate Reduction

Mélisa Champion’s parents, Marcelle and Jean-Yves Champion, documented how their daughter’s health changed after nasal surgery in 2007 and how severe dryness, respiratory problems, asthma, chronic pain and progressive loss of function came to dominate her life.

Mélisa Champion Empty Nose Syndrome case after septorhinoplasty and turbinate reduction
Mélisa Champion — original photograph from the source page.

Mélisa was described by her parents as sociable, friendly and passionate about travel. She stu%64%69%65%64 tourism and hoped to become a flight attendant. Her family says she sought treatment after persistent ear pain while traveling and was advised to undergo septoplasty for a deviated nasal septum.

According to her parents, Mélisa had been told about septoplasty but was not informed that the operation would include a complete septorhinoplasty and bilateral reduction of the inferior turbinates. They state that she would have refused the additional procedure if she had understood its full extent.

Source note: This page is based primarily on the testimony of Mélisa’s parents and the linked supporting material. Statements about informed consent, surgical consequences, irreversible tissue damage and the relationship between surgery and later illness are presented as reported by the family and source material.
NameMélisa Champion
CountryCanada
Age33 years
Surgery dateNovember 11, 2007
Procedure reportedSeptorhinoplasty + bilateral inferior turbinate reduction
Passed awayMay 23, 2015

Mélisa Champion’s video testimony

Mélisa’s video was recorded around December 16, 2014, during the period when she was living with severe ENS-related respiratory problems and relying heavily on humidified airflow.

The 2007 surgery: septorhinoplasty and inferior turbinate reduction

Mélisa’s operation took place on November 11, 2007. Her parents state that the operation report later described a “complete septorhinoplasty and bilateral reduction of inferior turbinates.”

The family’s central concern is informed consent. They say Mélisa understood that she was agreeing to correction of a deviated septum and had not been told in advance that her inferior turbinates would also be reduced.

Within months, Mélisa reportedly developed persistent nasal dryness and began requiring repeated treatments to remove secretions. Her parents describe those treatments as increasingly long, painful and exhausting.

Progressive ENS, asthma and widespread pain

Over time, the family reported a widening range of symptoms. Mélisa developed severe allergies, asthma attacks, facial pain, eye pain, ear pain, throat pain and recurrent headaches.

Extreme nasal dryness Loss of normal humidification became one of the earliest and most persistent problems.
Asthma and respiratory inflammation Her parents associated rapid, cold and poorly humidified airflow with repeated bronchial and lung irritation.
Facial and ENT pain Pain was described in the face, eyes, ears and throat together with recurrent headaches.
Severe fatigue Repeated treatments, poor breathing comfort and progressive illness left Mélisa increasingly exhausted.

In 2008, she began allergy desensitization treatment. Her health continued to decline, and the family says she ultimately lost her job and moved back home with her parents.

November 2007
Septorhinoplasty and bilateral inferior turbinate reduction

The procedure later became the central focus of the family’s ENS account.

2008
Allergy treatment begins

Mélisa received allergy vaccines while respiratory and nasal symptoms continued.

October 2013
Sick leave because of ENS

Her health had deteriorated enough that normal working life was no longer sustainable.

May 2014
Emergency hospitalization

The family reports hospitalization for a severe anaphylactic reaction.

2014
AIRVO humidification support

Mélisa began relying on heated humidified airflow to reduce respiratory discomfort.

May 2015
Severe irreversible nasal dysfunction documented

Another ENT reportedly advised against further surgery because of advanced mucosal atrophy.

Mélisa Champion using respiratory humidification support during severe Empty Nose Syndrome
Mélisa during the period when humidified airflow had become essential to daily life.

Living with an AIRVO humidification device

By 2014, Mélisa was using an AIRVO integrated flow humidifier. Her parents describe the device as essential because it warmed and humidified the air entering her respiratory system.

Without it, they said the cold and dry airflow caused intense bronchial and lung irritation, sometimes triggering prolonged asthma attacks and severe pain.

Her life became increasingly confined to the home and organized around respiratory support, symptom management and periods of rest.

Article and documentation about Mélisa Champion and Empty Nose Syndrome
Original article image documenting Mélisa Champion’s case. Click to enlarge.

May 2015: a difficult ENT assessment

In May 2015, Mélisa consulted another ENT. According to her parents, the physician told her that sinus function had become profoundly impaired and that the nasal tissues were severely damaged and atrophic.

The physician reportedly advised against further surgery because the mucosa was too compromised. Although the prognosis was extremely difficult, Mélisa’s parents wrote that she valued the doctor’s honesty and the time taken to explain her condition.

Her parents described this consultation as one of the few occasions when Mélisa felt that a physician fully understood the seriousness of her condition.

Mélisa Champion memorial and family testimony about Empty Nose Syndrome
Original image accompanying the testimony of Mélisa Champion’s parents. Click to enlarge.

Marcelle and Jean-Yves Champion: remembering their daughter

Mélisa’s parents emphasized that their daughter remained deeply attached to life despite severe illness. She found comfort in small moments with loved ones, reading, listening to music, following the news and trying to create periods of calm.

They also described the financial burden of seeking additional treatment. A possible procedure abroad was said to cost more than $50,000 once travel, hospitalization and related expenses were included.

Marcelle and Jean-Yves have continued sharing Mélisa’s story to advocate for recognition of Empty Nose Syndrome, better informed consent and greater caution before surgery involving the nasal turbinates.

Original testimony and supporting documentation

Laser Turbinate Reduction: The Risks Unveiled in Sherri Ann Cutrona’s Journey

Empty Nose Syndrome case · New Jersey, USA

Sherri Ann Cutrona: Empty Nose Syndrome After Laser Turbinate Reduction

Sherri Ann Cutrona was an engineer, mother and active member of the ENS and Tracheobronchomalacia communities. Her account describes decades of respiratory and nasal problems after turbinate surgery, later recognition of Empty Nose Syndrome, implants, repeated infections and extensive efforts to find relief.

Sherri Ann Cutrona, born in 1962, lived in Manchester Township, New Jersey. She passed away on July 16, 2020, at age 57. Originally from Hackensack, she had previously lived in Brick before moving to Manchester Township three years earlier.

Sherri worked as an engineer for Heyco Products in Toms River before retiring. She was active in the Tracheobronchomalacia (TBM) Support Group and the Facebook group Empty Nose Syndrome Awareness. She loved dancing, cooking, sewing and cruises.

She was survived by her two sons, Cory J. Speiser of Manchester Township and Shane C. Speiser of Brick, her father Joseph Oles of Toms River, her brother Jeff Cutrona of Toms River, and her sister Cynthia Ronan of South River. Her final wish was to have her ashes scattered at sea.

Source context: This page preserves the supplied account of Sherri Ann’s medical history and experiences. Statements about causation, turbinate loss, infections, nitric oxide, specific doctors and treatment effects are presented as reported in the source material rather than as independent medical findings.
NameSherri Ann Cutrona
Born1962
LocationManchester Township, New Jersey
ProfessionEngineer · Heyco Products
Reported turbinate lossAbout 50%
Passed awayJuly 16, 2020 · age 57

Sherri Ann Cutrona’s Story Regarding Empty Nose Syndrome

Sherri Ann’s journey with Empty Nose Syndrome was long and arduous and involved numerous consultations and treatments with different specialists.

She saw Dr. Oren Friedman at Penn in Philadelphia. According to Sherri Ann’s account, Dr. Friedman confirmed an ENS diagnosis but said there was little he could offer beyond Premarin cream, antibiotic ointment and nasal oil ordered from the Mayo Clinic. Sherri left the appointment disappointed and did not expect meaningful further help from that consultation.

In another consultation, this time by phone with Dr. Das, she was told that approximately 50% of her inferior turbinates had been removed. She wrote that Dr. Das was compassionate and knowledgeable about her many health problems, which she experienced as a welcome contrast after often feeling dismissed by other doctors.

Repeated Consultations and the Search for Relief

Sherri Ann repeatedly expressed frustration about her declining health. She had a port installed to make IVIG infusions easier because her veins had deteriorated.

She linked many of her long-term problems to turbinate surgery performed 29 years earlier and wrote that the consequences had prevented her from living a full life. The daily burden and repeated crying wore her down, and she often wrote that she simply wanted a few days of feeling well.

She asked other ENS patients about their experiences with implants, particularly people who had undergone surgery with Dr. Nayak. She wanted to know how long recovery took and whether they were satisfied with the results.

Other group members reassured her that she was not alone, but she continued to experience severe symptoms. She considered obtaining a new CT scan and sending it to Ohio State University for another evaluation.

Even after implants, Sherri described her nose as still being “desert dry.”

Chronic Sinus and Respiratory Problems

Sherri Ann had experienced chronic sinus and respiratory infections for years. The supplied account also lists severe asthma, GERD/reflux, IgG deficiency, sleep apnea, allergies and irritable bowel syndrome.

A further health crisis occurred when her trachea and main bronchus collapsed, requiring major surgery with mesh supports.

According to the source material, doctors considered several possible contributors to these respiratory problems, including chronic infections, workplace exposure to burning plastics, prolonged steroid use and Empty Nose Syndrome.

Looking back over many years of illness, Sherri Ann believed she had lived with undiagnosed ENS for a long time. She felt the condition worsened with age.

An endoscopic examination reportedly showed the extent of the previous laser turbinate reduction, with approximately 50% reduction in turbinate volume.

She was disheartened by the lack of understanding and support she had received. She also told another ENS community member that her sleep problems were severe and wrote that she had never slept normally again after her sinus surgeries.

Nasal Implants, CFD Study and Experimental Treatment Search

Sherri Ann underwent an experimental procedure intended to add nasal implants and restore some of the volume lost after turbinate reduction.

The implants were performed by Dr. Overdevst. Four months after the procedure, Sherri wrote that she had experienced no improvement.

She was also exploring stem-cell injections as a possible treatment and had an appointment scheduled.

Before receiving the implants, she underwent a CFD study. The result is included in the supporting material linked further down this page.

In correspondence with other patients, Sherri repeatedly expressed frustration over the lack of effective treatment options and research for Empty Nose Syndrome.

Although she sometimes felt hopeless, she continued to find comfort in her faith and in the support of other people with ENS. She continued seeking new medical opinions and treatment possibilities because she still believed relief might be possible.

Video About Sherri Ann Cutrona’s Case

Final Years, Recurrent Lung Infections and Her Legacy

Sherri Ann passed away on July 16, 2020, at age 57 after another lung infection.

The source material argues that an abnormally open and dry nasal airway may reduce normal filtration and humidification before air reaches the lower respiratory tract. It also raises the possibility that reduced nasal nitric-oxide production after severe mucosal injury could affect local antimicrobial defenses. These mechanisms are presented here as hypotheses and concerns raised in the source material, not as proof of the cause of Sherri Ann’s recurrent lung infections.

Sherri Ann’s struggle with ENS and her many respiratory complications was relentless. Her loss was deeply felt by members of the Empty Nose Syndrome Awareness community.

Her story highlights how severely ENS can affect quality of life and why patients continue to call for better recognition, informed consent, research and treatment options.

Sherri Ann spent much of her life without knowing that some of her symptoms might be related to an earlier laser turbinate reduction that, according to later evaluation, had reduced the volume of her inferior turbinates by around 50%.

Supporting Documentation

The collected material includes further information about Sherri Ann’s medical history, treatments, CFD study and ENS-related discussions.

Septorhinoplasty and Atrophic Rhinitis: The Tragic Path of Rachel Jordan

Empty Nose Syndrome case · United Kingdom

Rachel Jordan: Empty Nose Syndrome, Severe Nasal Dryness and Breathing Problems After Septorhinoplasty

Rachel Jordan’s story documents severe nasal dryness, loss of airflow sensation, disturbed breathing and sleep problems that she described after years of nasal symptoms and later septorhinoplasty. This page brings together her own reported experiences, archived support-group material, photographs, a video and additional documents relating to Empty Nose Syndrome (ENS), atrophic rhinitis and impaired nasal sensation.

Rachel Jordan – Empty Nose Syndrome and septorhinoplasty case
Rachel Jordan. Image preserved with the original case material.
Source note: The descriptions below are based on posts, comments and material collected from Rachel’s support-group activity and related records. They document her reported symptoms and experiences; they should not be read as independent medical or legal findings.
NameRachel Jordan
CountryUnited Kingdom
Key symptomsDryness, poor airflow sensation, manual breathing
Medication mentionedSertraline and mirtazapine
Nasal surgerySeptorhinoplasty
Passed away2021

Rachel Jordan’s reported symptoms and daily struggle

Rachel Jordan, from the United Kingdom, passed away in 2021 after a final crisis. In support-group posts preserved with this material, she described severe nasal and breathing problems that had come to dominate her daily life. She repeatedly wrote that breathing through her nose no longer felt automatic or normal and that she could barely sense the movement of air.

Her posts described a nose that felt extremely dry, with very little sensation or resistance. She associated this with a constant feeling of being unable to breathe properly, a pounding pulse, dizziness and a persistent fight-or-flight response. She also expressed fear that her health problems would prevent her from seeing her young daughter grow up.

Rachel asked other group members about medication for anxiety and panic associated with her breathing symptoms. She had previously tried sertraline but reported difficulty tolerating the initial side effects. She later used mirtazapine to help her sleep.

Severe nasal dryness and loss of airflow sensation

One of Rachel’s most persistent complaints was profound nasal dryness. She wrote that she could not keep the inside of her nose adequately moisturized and believed that the mucosal lining of her septum and turbinates had been seriously damaged. She questioned whether metaplastic or atrophic changes might explain the lack of normal moisture and sensation.

She reported trying numerous products and approaches, including saline rinses, NeilMed, Xlear, Ayr gel, coconut oil, Bepanthen nasal cream and petroleum jelly, but said that none provided lasting relief.

Rachel also described a long history of nasal crusting. She wrote that she had repeatedly removed crusts from the septum over the years, sometimes leaving the tissue sore and prone to bleeding. Later, she became concerned that chronic crusting and irritation might have contributed to long-term mucosal damage.

Manual breathing, dizziness and disrupted sleep

Rachel frequently described having to consciously control her breathing. She said that unless she was asleep, breathing no longer seemed fully automatic and that she had to think about the rhythm and depth of each breath. She linked this to dizziness, lightheadedness, poor concentration and a sense that she could not get the breathing pattern right.

Her symptoms were often worse in the early morning. She reported waking between approximately 3 and 5 a.m. with severe anxiety and difficulty settling her breathing. Even with mirtazapine, she sometimes slept only a few hours. She also described waking suddenly, sweating and feeling as though she had been over-breathing or hyperventilating.

During the day, Rachel reported noisy and difficult nasal breathing, pressure around the nasal valve area, accessory-muscle pain and a persistent sense of respiratory discomfort. In the evening she sometimes noticed slightly more nasal resistance or swelling, which she felt could reduce her anxiety somewhat.

Septorhinoplasty and worsening symptoms

Rachel reported that she had undergone septorhinoplasty in an attempt to improve nasal airflow. In the material collected for this page, she later expressed regret about the operation and wrote that her symptoms had become considerably worse afterward.

She described the inside of her nose as numb and unusually open, with little resistance and poor ability to sense airflow or temperature changes. She also questioned whether she had internal nasal valve collapse and asked other patients about their symptoms and experiences with valve surgery.

The source material does not establish the exact details of every surgical manoeuvre performed during Rachel’s operation. For that reason, possible changes to the nasal valve should be treated as a question raised in the archived posts rather than as a confirmed surgical finding.

Video about Rachel Jordan and her breathing problems

The video below forms part of the material collected about Rachel’s experience with severe nasal symptoms, impaired airflow sensation and suspected Empty Nose Syndrome.

What septorhinoplasty involves

Septorhinoplasty combines procedures that alter the nasal septum with procedures that reshape or reconstruct the external and internal framework of the nose. The exact techniques vary depending on the patient and the purpose of the operation.

Septoplasty

Septoplasty is performed to correct structural problems of the nasal septum. Depending on the case, cartilage or bone may be repositioned, reshaped or removed, and the mucosal lining is then repositioned over the corrected structure.

Rhinoplasty

Rhinoplasty changes the shape or structural support of the nose. It may be performed through an open or closed approach and can involve reshaping bone and cartilage or adding cartilage grafts. In some functional procedures, structural support around the nasal valve may also be modified.

Recognized categories of complications

  • Bleeding, infection or adverse reactions related to surgery or anesthesia.
  • Persistent or new nasal breathing difficulties.
  • Numbness, altered sensation, swelling or scarring.
  • Structural or cosmetic results that may require further treatment.

Empty Nose Syndrome, atrophic rhinitis and nasal sensory function

Rachel’s archived posts repeatedly focus on three issues: extreme dryness, reduced nasal sensation and an abnormal perception of breathing. She questioned whether longstanding atrophic changes had affected the nasal mucosa and whether surgery had further altered the resistance and sensory feedback that normally accompany nasal airflow.

These concerns overlap with symptoms commonly discussed by patients with Empty Nose Syndrome, including paradoxical nasal obstruction, a sensation that the nose is too open, dryness, reduced airflow perception and significant respiratory discomfort. Rachel herself sought advice from other patients about whether her symptoms could represent ENS.

The material also records episodes of dizziness, waking with a sensation of over-breathing and difficulty regulating the depth and rhythm of respiration. Rachel described these experiences in her own words as part of the progression of her condition.

About the community figures: The original page states that the site has collected reports of multiple tragic losses and serious crises following various nasal operations. Those figures are community-compiled observations and should not be presented as population-level incidence data or proof of causation.

Rachel’s story illustrates the profound impact that severe chronic nasal and breathing symptoms can have on sleep, concentration, daily functioning and quality of life. Preserving her own reports is valuable because they document how she experienced the progression of her symptoms and the difficulty she had finding relief.

Supporting documents about Rachel Jordan

Additional information and supporting records concerning Rachel Jordan are available in the document below.